Paediatric Critical Care Minimum Data Set

The Paediatric Critical Care Minimum Data Set (PCCMDS) provides a record of what happens to a PATIENT when they receive Paediatric Critical Care in a Paediatric Intensive Care Unit, or other critical care setting suitable for children.

Overview

Introduction

The primary purpose of the Paediatric Critical Care Minimum Data Set is to allow the operation of the National Tariff Payment System within paediatric critical care. The Paediatric Critical Care Minimum Data Set supports the National Tariff Payment System by capturing the data needed to generate a Healthcare Resource Group (HRG) for each calendar day (or part thereof) of a period of paediatric critical care; these Healthcare Resource Groups are then used to inform the annual aggregate costing exercise, NHS Reference Costs.

Scope and Uses

The scope of the Paediatric Critical Care Minimum Data Set is:

a) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code '04 - Paediatric Intensive Care Unit (Paediatric critical care patients predominate)'

b) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code of either:

16 - Ward for children and young people
17 - High Dependency Unit for children and young people
18 - Renal Unit for children and young people
19 - Burns Unit for children and young people
92 - Non standard location using the operating department for children and young people

to whom one or more of the following CRITICAL CARE ACTIVITY CODES applies for a period greater than 4 hours:


04	Exchange Transfusion (PATIENT received exchange transfusion)
05	Peritoneal dialysis (acute PATIENTS only i.e. excluding chronic) *
06	Continuous infusion of inotrope, pulmonary vasodilator or prostaglandin (PATIENT received a continuous infusion of an inotrope, vasodilator (includes pulmonary vasodilators) or prostaglandin)
09	Oxygen Therapy (supplementary Oxygen Therapy, irrespective of ventilatory state) **
13	Tracheostomy cared for by nursing staff (PATIENT receiving care of tracheostomy cared for by nursing staff not by an external Carer (e.g. parent))
16	Haemofiltration (PATIENT received Haemofiltration)
50	Continuous electrocardiogram monitoring
51	Invasive ventilation via endotracheal tube
52	Invasive ventilation via tracheostomy tube
53	Non-invasive ventilatory support
55	Nasopharyngeal airway
56	Advanced ventilatory support (Jet or Oscillatory ventilation)
57	Upper airway obstruction requiring nebulised Epinephrine/ Adrenaline
58	Apnoea requiring intervention
59	Acute severe asthma requiring intravenous bronchodilator therapy or continuous nebuliser
60	Arterial line monitoring
61	Cardiac pacing via an external box (pacing wires or external pads or oesophageal pacing)
62	Central venous pressure monitoring
63	Bolus intravenous fluids (> 80 ml/kg/day) in addition to maintenance intravenous fluids
64	Cardio-pulmonary resuscitation (CPR)
65	Extracorporeal membrane oxygenation (ECMO) or Ventricular Assist Device (VAD) or aortic balloon pump
66	Haemodialysis (acute PATIENTS only i.e. excluding chronic)
67	Plasma filtration or Plasma exchange
68	ICP-intracranial pressure monitoring
69	Intraventricular catheter or external ventricular drain
70	Diabetic ketoacidosis (DKA) requiring continuous infusion of insulin
71	Intravenous infusion of thrombolytic agent (limited to tissue plasminogen activator [tPA] and streptokinase)
72	Extracorporeal liver support using Molecular Absorbent Liver Recirculating System (MARS)
73	Continuous pulse oximetry
74	PATIENT nursed in single occupancy cubicle
80	Heated Humidified High Flow Therapy (HHHFT) (PATIENT receiving HHHFT)
85	PATIENT has an epidural catheter in situ
94	PATIENT has arrhythmia requiring intravenous anti-arrhythmic therapy
95	PATIENT has reduced conscious level (Glasgow Coma Score 12 or below) and hourly (or more frequent) Glasgow Coma Score monitoring
96	Intravenous infusion of sedative agent (PATIENT receiving continuous intravenous infusion of sedative agent)
97	PATIENT has status epilepticus requiring treatment with continuous intravenous infusion

Notes:

* National Code 05 applies as an inclusion criterion for acute PATIENTS only: it does not apply with chronic PATIENTS.
** National Code 09 applies as an inclusion criterion when the PATIENT receives supplementary Oxygen Therapy, irrespective of their ventilatory state.

This data is captured and recorded locally and may be used for the purposes of direct care, clinical audit, Reference Costs, and other local uses. Any transmission of the Paediatric Critical Care Minimum Data Set must be covered by fair processing arrangements in accordance with information governance criteria and appropriate local arrangements.

Commissioning Data Set Transmission

Subject to the Commissioning Data Set Version 6-2 XML Schema Constraints and Commissioning Data Set Version 6-3 XML Schema Constraints, the Paediatric Critical Care Minimum Data Set is sent to the Secondary Uses Service (SUS) as a part of the following Commissioning Data Set messages, SCCI0076:

The Secondary Uses Service groups this data into paediatric critical care Healthcare Resource Groups. Further guidance can be found on the NHS England website at: SCCI0076.

Specification


Person Group (Patient) To carry the personal details of the Patient.One occurrence of this Group is permitted.
Mandation	Data Elements
	PERSON BIRTH DATE
	DISCHARGE DATE (HOSPITAL PROVIDER SPELL)
	DISCHARGE METHOD CODE (HOSPITAL PROVIDER SPELL)


Paediatric Critical Care Group To carry the details of the Paediatric Critical Care Period.
Mandation	Data Elements
	CRITICAL CARE LOCAL IDENTIFIER
	CRITICAL CARE START DATE
	CRITICAL CARE START TIME
	CRITICAL CARE DISCHARGE DATE
	CRITICAL CARE DISCHARGE TIME
	CRITICAL CARE UNIT FUNCTION


Paediatric Critical Care Daily Activity Group To carry the daily activity data for each day of the Paediatric Critical Care Period. 999 occurrences of this Group are permitted.
Mandation	Data Elements
	ACTIVITY DATE (CRITICAL CARE)


20 occurrences of Critical Care Activity Codes are permitted within the Paediatric Critical Care Daily Activity Group 20 occurrences of Critical Care Activity Codes are permitted within the Paediatric Critical Care Daily Activity Group. All codes relate to care provided on the CRITICAL CARE START DATE.
Mandation	Data Elements
	CRITICAL CARE ACTIVITY CODE


2 HIGH COST DRUGS (OPCS) codes are permitted but there is the capacity for 20 codes within the Paediatric Critical Care Daily Activity Group, to allow future refinement 2 HIGH COST DRUGS (OPCS) codes are permitted but there is the capacity for 20 codes within the Paediatric Critical Care Daily Activity Group, to allow future refinement. All codes relate to drugs provided on the CRITICAL CARE LOCAL IDENTIFIER.
Mandation	Data Elements
	HIGH COST DRUGS (OPCS)

Also Known As

This data set is also known by these names:

Context	Alias
Also known as	PCCMDS
Short name	Paediatric Critical Care