Neonatal Critical Care Minimum Data Set

The Neonatal Critical Care Minimum Data Set (NCCMDS) provides a record of what happens to a PATIENT when they receive Neonatal Critical Care in a Neonatal Intensive Care Unit, Maternity WARD, or Neonatal Transitional Care WARD.

Overview

Introduction

The primary purpose of the Neonatal Critical Care Minimum Data Set is to allow the operation of the National Tariff Payment System within neonatal critical care. The Neonatal Critical Care Minimum Data Set supports the National Tariff Payment System by capturing the data needed to generate a Healthcare Resource Group (HRG) for each calendar day (or part thereof) of a period of neonatal critical care; these Healthcare Resource Groups are then used to inform the annual aggregate costing exercise, NHS Reference Costs.

Scope and Uses

The scope of the Neonatal Critical Care Minimum Data Set is:

a) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code '13 - Neonatal Intensive Care Unit (Neonatal critical care patients predominate)'.

b) All PATIENTS (excluding Mothers) on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code:

14 - Facility for Babies on a Neonatal Transitional Care Ward
15 - Facility for Babies on a Maternity Ward

to whom one or more of the following CRITICAL CARE ACTIVITY CODES applies for a period greater than 4 hours:


01	Respiratory support via a tracheal tube (Respiratory support via a tracheal tube provided)
02	Nasal Continuous Positive Airway Pressure (nCPAP) (PATIENT receiving nCPAP for any part of the day)
04	Exchange Transfusion (PATIENT received exchange transfusion)
05	Peritoneal Dialysis (PATIENT received Peritoneal Dialysis)
06	Continuous infusion of inotrope, pulmonary vasodilator or prostaglandin (PATIENT received a continuous infusion of an inotrope, vasodilator (includes pulmonary vasodilators) or prostaglandin)
07	Parenteral Nutrition (PATIENT receiving Parenteral Nutrition (amino acids +/- lipids))
08	Convulsions (PATIENT having convulsions requiring treatment)
09	Oxygen Therapy (PATIENT receiving additional oxygen)
10	Neonatal abstinence syndrome (PATIENT receiving drug treatment for neonatal abstinence (withdrawal) syndrome)
11	Care of an intra-arterial catheter or chest drain (PATIENT receiving care of an intra-arterial catheter or chest drain)
12	Dilution Exchange Transfusion (PATIENT received Dilution Exchange Transfusion)
13	Tracheostomy cared for by nursing staff (PATIENT receiving care of tracheostomy cared for by nursing staff not by an external Carer (e.g. parent))
14	Tracheostomy cared for by external Carer (PATIENT receiving care of tracheostomy cared for by an external Carer (e.g. parent) not by a NURSE)
15	Recurrent apnoea (PATIENT has recurrent apnoea needing frequent intervention, i.e. over 5 stimulations in 8 hours, or resuscitation with IPPV two or more times in 24 hours)
16	Haemofiltration (PATIENT received Haemofiltration)
22	Continuous monitoring (PATIENT requiring continuous monitoring (by mechanical monitoring equipment) of respiration or heart rate, or by transcutaneous transducers or by Saturation Monitors. Note: apnoea alarms and monitors are excluded as forms of continuous monitoring)
23	Intravenous glucose and electrolyte solutions (PATIENT being given intravenous glucose and electrolyte solutions)
24	Tube-fed (PATIENT being tube-fed)
25	Barrier nursed (PATIENT being barrier nursed)
26	Phototherapy (PATIENT receiving phototherapy)
27	Special monitoring (PATIENT receiving special monitoring of blood glucose or serum bilirubin measurement at a minimum frequency of more than one per calendar day)
28	Observations at regular intervals (PATIENT requiring recorded observations for temperature, heart rate, respiratory rate, blood pressure or scoring for neonatal abstinence syndrome. Recorded observations must be at a minimum frequency of 4 hourly)
29	Intravenous medication (PATIENT receiving intravenous medication)
80	Heated Humidified High Flow Therapy (HHHFT) (PATIENT receiving HHHFT)
81	Presence of an umbilical venous line
82	Continuous infusion of insulin (PATIENT receiving a continuous infusion of insulin)
83	Therapeutic hypothermia (PATIENT receiving therapeutic hypothermia)
84	PATIENT has a Replogle tube in situ
85	PATIENT has an epidural catheter in situ
86	PATIENT has an abdominal silo
87	Administration of intravenous (IV) blood products
88	PATIENT has a central venous or long line (Peripherally Inserted Central Catheter line) in situ
89	PATIENT has an indwelling urinary or suprapubic catheter in situ
90	PATIENT has a trans-anastomotic tube in situ following oesophageal atresia repair
91	PATIENT has confirmed clinical seizure(s) today and/or continuous cerebral function monitoring (CFM)
92	PATIENT has a ventricular tap via needle or reservoir today
93	PATIENT has a stoma

This data is captured and recorded locally and may be used for the purposes of direct care, clinical audit, Reference Costs, and other local uses. Any transmission of the Neonatal Critical Care Minimum Data Set must be covered by fair processing arrangements in accordance with information governance criteria and appropriate local arrangements.

Commissioning Data Set Transmission

Subject to the Commissioning Data Set Version 6-2 XML Schema Constraints, the Neonatal Critical Care Minimum Data Set is carried into the Secondary Uses Service (SUS) as a part of the following Commissioning Data Set messages, see SCCI0075:

The Secondary Uses Service groups this data into neonatal critical care Healthcare Resource Groups; these are a mandated currency under the National Tariff Payment System. Further guidance can be found on the NHS England website at: SCCI0075.

Specification


Person Group (Patient) To carry the personal details of the Patient (the baby).One occurrence of this Group is permitted.
Mandation	Data Elements
	PERSON BIRTH DATE
	DISCHARGE DATE (HOSPITAL PROVIDER SPELL)
	DISCHARGE METHOD CODE (HOSPITAL PROVIDER SPELL)


Neonatal Critical Care Group To carry the details of the Neonatal Critical Care Period.One occurrence of this Group is permitted.
Mandation	Data Elements
	CRITICAL CARE LOCAL IDENTIFIER
	CRITICAL CARE START DATE
	CRITICAL CARE START TIME
	CRITICAL CARE DISCHARGE DATE
	CRITICAL CARE DISCHARGE TIME
	CRITICAL CARE UNIT FUNCTION
	GESTATION LENGTH (AT DELIVERY)


Neonatal Critical Care Daily Activity Group To carry the daily activity data for each day of the Neonatal Critical Care Period.999 occurrences of this Group are permitted.
Mandation	Data Elements
	ACTIVITY DATE (CRITICAL CARE)
	PERSON WEIGHT


20 occurrences of Critical Care Activity Codes are permitted within the Neonatal Critical Care Daily Activity Group 20 occurrences of Critical Care Activity Codes are permitted within the Neonatal Critical Care Daily Activity Group. All codes relate to care provided on the ACTIVITY DATE (CRITICAL CARE).
Mandation	Data Elements
	CRITICAL CARE ACTIVITY CODE


20 occurrences of High Cost Drugs OPCS codes are permitted within the Neonatal Critical Care Daily Activity Group 20 occurrences of High Cost Drugs OPCS codes are permitted within the Neonatal Critical Care Daily Activity Group. All codes relate to drugs provided on the ACTIVITY DATE (CRITICAL CARE).
Mandation	Data Elements
	HIGH COST DRUGS (OPCS)

Also Known As

This data set is also known by these names:

Context	Alias
Also known as	NCCMDS
Short name	Neonatal Critical Care