National Neonatal Data Set - Episodic and Daily Care

Overview

Introduction

The National Neonatal Data Set consists of a defined list of data items that are extracted from electronic clinical records created by clinical staff on all admissions to NHS Neonatal Units in England, Wales and Scotland.

The National Neonatal Data Set is in two parts:

National Neonatal Data Set - Episodic and Daily Care
- The National Neonatal Data Set - Episodic and Daily Care covers the period of time a baby is cared for in a Neonatal Unit regardless of the designation (Neonatal Intensive Care Unit, Local Neonatal Unit, Special Care Baby Unit, Transitional Care Unit)
National Neonatal Data Set - Two Year Neonatal Outcomes Assessment
- The National Neonatal Data Set - Two Year Neonatal Outcomes Assessment covers data relating to a Two Year Neonatal Outcomes Assessment carried out on the same child approximately two years after their stay in a Neonatal Unit.
- The Two Year Neonatal Outcomes Assessment may be carried out by the same ORGANISATION responsible for the Neonatal Unit admission or a different ORGANISATION.

The two neonatal data sets comprise data items relating to PATIENT demographics, CLINICAL INTERVENTIONS, outcomes, and PATIENT DIAGNOSES. Each data item is mapped or in the process of being mapped where possible to existing Information Standards and Data Collections (including Extractions) (such as the Neonatal Critical Care Minimum Data Set and Maternity Services Data Set) as well as to SNOMED CT and ICD codes.

The National Neonatal Data Set consists of a defined list of data items that are extracted from electronic clinical records created by clinical staff relating to all admissions to a Neonatal Unit in England, Wales and Scotland. The Neonatal Data Analysis Unit has established a database, the National Neonatal Research Database, to hold data comprising the National Neonatal Data Set, as a national resource, to serve a variety of needs, so avoiding duplicate data collections for different purposes, minimising the burden placed upon clinical teams, and promoting data quality and completeness.

Submission Information

Identifiable information (i.e. PERSON IDENTIFIERS, such as NHS NUMBER) is pseudonymised by the System Supplier before being submitted to the Neonatal Data Analysis Unit. These pseudonymised data items are listed alongside their identifiable counterparts in the National Neonatal Data Set. Only data from PATIENTS whose parents have not opted-out of secondary uses of their babies data will flow to the Neonatal Data Analysis Unit.

Where anonymisation is required, the dates and times of events carried throughout the data set (such as CODED PROCEDURE TIMESTAMP (SAMPLE COLLECTION), CODED PROCEDURE TIMESTAMP (ABDOMINAL X-RAY) should be replaced with the specific relevant year and month of the event and the NUMBER OF MINUTES (BIRTH TO EVENT).

Further Guidance

Further guidance has been produced by the Neonatal Data Analysis Unit and is available on their website at: Neonatal Data Analysis Unit.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
R = Required: NHS business processes cannot be delivered without this data element
O = Optional: the inclusion of this data element is optional as required for local purposes
P = Pilot: this data element is for piloting use only.

Note: items in the Mandation column which are shown with notation P are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set. These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.

Specification


DEMOGRAPHICS AND BIRTH INFORMATION (BABY) To carry the Baby's demographic details.One occurrence of this group is required.
Mandation	Data Elements
R	NHS NUMBER (BABY)
R	PSEUDONYMISED NHS NUMBER (BABY)
R	NHS NUMBER STATUS INDICATOR CODE (BABY)
R	COMMUNITY HEALTH INDEX NUMBER (BABY)
R	PSEUDONYMISED COMMUNITY HEALTH INDEX NUMBER (BABY)
R	HEALTH AND CARE NUMBER (BABY)
R	PSEUDONYMISED HEALTH AND CARE NUMBER (BABY)
M	BABY LOCAL PATIENT IDENTIFIER (NATIONAL NEONATAL DATA SET)
R	DELIVERY TIMESTAMP
R	YEAR AND MONTH OF BIRTH (BABY)
R	ETHNIC CATEGORY (BABY)
P	ETHNIC CATEGORY 2021 (BABY)
M	ORGANISATION SITE IDENTIFIER (OF ACTUAL PLACE OF DELIVERY)
R	BIRTH WEIGHT IN GRAMS
O	BIRTH LENGTH IN CENTIMETRES
O	BIRTH HEAD CIRCUMFERENCE IN CENTIMETRES
R	GESTATION LENGTH (AT DELIVERY)
R	GESTATION LENGTH (REMAINING DAYS AT DELIVERY)
R	PERSON PHENOTYPIC SEX
R	PERSON GENOTYPIC SEX (NATIONAL NEONATAL DATA SET)
O	BLOOD GROUP (BABY)
O	RHESUS GROUP (BABY)
R	BASE DEFICIT CONCENTRATION (WORST WITHIN 12 HOURS AFTER BIRTH)


PARENTS To carry the Parent's demographic details.One occurrence of this group is permitted.
Mandation	Data Elements
R	NHS NUMBER (MOTHER)
R	PSEUDONYMISED NHS NUMBER (MOTHER)
R	NHS NUMBER STATUS INDICATOR CODE (MOTHER)
R	COMMUNITY HEALTH INDEX NUMBER (MOTHER)
R	PSEUDONYMISED COMMUNITY HEALTH INDEX NUMBER (MOTHER)
R	HEALTH AND CARE NUMBER (MOTHER)
R	PSEUDONYMISED HEALTH AND CARE NUMBER (MOTHER)
R	YEAR OF BIRTH (MOTHER)
R	POSTCODE OF USUAL ADDRESS (MOTHER)
R	LOWER LAYER SUPER OUTPUT AREA (PERSON RESIDENCE)
O	HIGHEST EDUCATION ENROLMENT LEVEL MOTHER (NATIONAL NEONATAL DATA SET)
O	OCCUPATION MOTHER (SNOMED CT)
R	ETHNIC CATEGORY (MOTHER)
P	ETHNIC CATEGORY 2021 (MOTHER)
R	GENERAL MEDICAL PRACTICE (PATIENT REGISTRATION MOTHER)
R	YEAR OF BIRTH (FATHER)
R	ETHNIC CATEGORY (FATHER)
P	ETHNIC CATEGORY 2021 (FATHER)
R	PARENTS CONSANGUINEOUS INDICATOR


ANTENATAL To carry details of the antenatal phase of the maternity episode.One occurrence of this group is permitted.
Mandation	Data Elements
M	ORGANISATION SITE IDENTIFIER (OF PLANNED DELIVERY)
R	NUMBER OF PREVIOUS PREGNANCIES RESULTING IN REGISTRABLE BIRTH
R	CHORIONICITY STATUS
R	ZYGOSITY STATUS
R	AMNIONICITY STATUS
R	MATERNITY COMPLICATING MEDICAL DIAGNOSIS TYPE (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted
R	MATERNITY OBSTETRIC DIAGNOSIS TYPE (CURRENT MATERNITY EPISODE) Multiple occurrences of this item are permitted
R	MATERNITY MEDICAL DIAGNOSIS TYPE (CURRENT MATERNITY EPISODE) Multiple occurrences of this item are permitted
R	BLOOD GROUP (MOTHER)
R	RHESUS GROUP (MOTHER)
O	HAEMOGLOBINOPATHY INVESTIGATION RESULT CODE FOR NATIONAL NEONATAL DATA SET (MOTHER)
R	SARS-COV-2 STATUS INDICATION CODE (NATIONAL NEONATAL DATA SET)
R	MOTHER CURRENT SMOKER AT BOOKING INDICATOR
O	CIGARETTES PER DAY (MOTHER AT BOOKING)
O	ALCOHOL USE INDICATOR
O	NUMBER OF ALCOHOL UNITS PER WEEK
O	ILLICIT SUBSTANCE USE INDICATOR
O	ILLICIT SUBSTANCE USE TYPE
O	OTHER ILLICIT SUBSTANCE USE DESCRIPTION
O	PRESCRIBED DRUG USE INDICATOR
O	ANTENATAL PRESCRIBED DRUG (DM+D) Multiple occurrences of this item are permitted
R	STEROIDS ADMINISTERED DURING PREGNANCY TO MATURE FETAL LUNGS INDICATOR
R	ANTENATAL STEROID COURSE COMPLETION STATUS
R	STEROID TYPE ADMINISTERED TO MOTHER (DM+D) Multiple occurrences of this item are permitted
R	OFFER STATUS (MAGNESIUM SULPHATE)
R	MAGNESIUM SULPHATE ADMINISTERED INDICATOR
R	INVESTIGATION RESULT CODE (MOTHER RUBELLA SCREENING)
R	HEPATITIS B STATUS (CURRENT MATERNITY EPISODE)
R	HIV STATUS (CURRENT MATERNITY EPISODE)
R	SYPHILIS STATUS (CURRENT MATERNITY EPISODE VDRL TEST)
R	SYPHILIS STATUS (CURRENT MATERNITY EPISODE TPHA TEST)
R	HEPATITIS C STATUS (CURRENT MATERNITY EPISODE)
R	LAST MENSTRUAL PERIOD DATE
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	LAST MENSTRUAL PERIOD YEAR AND MONTH
R	ESTIMATED DATE OF DELIVERY (AGREED)
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	ESTIMATED DATE OF DELIVERY (AGREED) YEAR AND MONTH
R	METHOD OF ESTIMATED DATE OF DELIVERY (AGREED)


LABOUR AND DELIVERY To carry details of the labour and delivery.One occurrence of this group is permitted.
Mandation	Data Elements
R	LABOUR ONSET METHOD CODE (NATIONAL NEONATAL DATA SET)
R	MECONIUM PRESENT IN LIQUOR INDICATOR
O	MEDICATION ADMINISTERED DURING LABOUR (DM+D) Multiple occurrences of this item are permitted
R	RUPTURE OF MEMBRANES DATE AND TIME
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	RUPTURE OF MEMBRANES YEAR AND MONTH
O	SIGNIFICANT MATERNAL PYREXIA IN LABOUR INDICATOR
R	PRESENTATION OF FETUS AT DELIVERY
R	MODE OF DELIVERY
R	IN LABOUR BEFORE CAESAREAN SECTION INDICATOR
R	DELIVERY INSTRUMENT TYPE Multiple occurrences of this item are permitted
R	BIRTH ORDER (MATERNITY SERVICES)
R	NUMBER OF FETUSES (MATERNITY EPISODE)
O	TIME BETWEEN DELIVERY AND SPONTANEOUS RESPIRATION CODE
R	APGAR SCORE (1 MINUTE)
R	APGAR SCORE (5 MINUTES)
R	APGAR SCORE (10 MINUTES)
R	NEONATAL RESUSCITATION METHOD (NATIONAL NEONATAL DATA SET)
O	NEONATAL RESUSCITATION DRUG (DM+D) Multiple occurrences of this item are permitted
R	UMBILICAL CORD CLAMPED IMMEDIATELY AFTER BIRTH INDICATOR
R	TIME BETWEEN DELIVERY AND UMBILICAL CORD CLAMPING
O	UMBILICAL CORD MILKING PERFORMED INDICATOR
O	UMBILICAL CORD BLOOD PH LEVEL (ARTERIAL)
O	UMBILICAL CORD BLOOD PH LEVEL (VENOUS)
O	UMBILICAL CORD BLOOD PARTIAL PRESSURE CARBON DIOXIDE (ARTERIAL)
O	UMBILICAL CORD BLOOD PARTIAL PRESSURE CARBON DIOXIDE (VENOUS)
O	UMBILICAL CORD BLOOD LACTATE LEVEL
O	UMBILICAL CORD BLOOD BASE EXCESS CONCENTRATION (ARTERIAL)
O	UMBILICAL CORD BLOOD BASE EXCESS CONCENTRATION (VENOUS)
R	SURFACTANT ADMINISTERED INDICATOR (DURING INITIAL MANAGEMENT)
R	AGE IN MINUTES (BIRTH TO SURFACTANT FIRST DOSE)
R	DELIVERY IN WATER PLANNED INDICATOR
R	DELIVERED IN WATER INDICATOR (NATIONAL NEONATAL DATA SET)


ADMISSION TO NEONATAL CRITICAL CARE To carry details of the admission to Neonatal Critical Care.One occurrence of this group is required.
Mandation	Data Elements
M	CRITICAL CARE START DATE AND TIME
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	CRITICAL CARE START YEAR AND MONTH
M	ORGANISATION SITE IDENTIFIER (OF ADMITTING NEONATAL UNIT)
R	EPISODE NUMBER (NEONATAL CRITICAL CARE SPELL)
R	ORGANISATION SITE IDENTIFIER (ADMITTED FROM TO NEONATAL UNIT)
O	LOCATION IN HOSPITAL TYPE (BABY ADMITTED FROM)
R	PRIMARY CATEGORY OF CARE REQUIRED ON ADMISSION TO NEONATAL CRITICAL CARE
R	READMISSION TO NEONATAL UNIT INDICATOR
R	PRIMARY REASON FOR ADMISSION TO NEONATAL UNIT
R	TEMPERATURE RECORDED AFTER ADMISSION TO NEONATAL CRITICAL CARE INDICATOR
M	TEMPERATURE (ON ADMISSION TO NEONATAL CRITICAL CARE)
R	CODED OBSERVATION TIMESTAMP (TEMPERATURE)
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	MEAN ARTERIAL BLOOD PRESSURE (ON ADMISSION TO NEONATAL CRITICAL CARE)
R	HEART RATE (ON ADMISSION TO NEONATAL CRITICAL CARE)
O	RESPIRATORY RATE (ON ADMISSION TO NEONATAL CRITICAL CARE)
O	OXYGEN SATURATION (ON ADMISSION TO NEONATAL CRITICAL CARE)
O	BLOOD GLUCOSE CONCENTRATION (ON ADMISSION TO NEONATAL CRITICAL CARE)
R	DIAGNOSIS (ICD ON ADMISSION TO NEONATAL CRITICAL CARE) Multiple occurrences of this item are permitted And/Or DIAGNOSIS (SNOMED CT ON ADMISSION TO NEONATAL CRITICAL CARE) Multiple occurrences of this item are permitted
O	PARENTAL CONSENT TO ADMINISTER VITAMIN K INDICATOR
O	VITAMIN K ADMINISTERED INDICATOR
O	VITAMIN K ROUTE OF ADMINISTRATION
M	PARENTS SEEN BY SENIOR STAFF MEMBER WITHIN 24 HOURS OF ADMISSION INDICATOR
R	PARENTS SEEN BY SENIOR STAFF MEMBER DATE AND TIME
R	NUMBER OF MINUTES (BIRTH TO EVENT)


DISCHARGE FROM NEONATAL CRITICAL CARE
Mandation	Discharge To carry details of the discharge from Neonatal Critical Care.One occurrence of this group is permitted.
R	CRITICAL CARE DISCHARGE DATE AND TIME
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	CRITICAL CARE DISCHARGE YEAR AND MONTH
M	DISCHARGE DESTINATION FROM NEONATAL CRITICAL CARE
R	TRANSFERRED FOR FURTHER CARE TYPE (NATIONAL NEONATAL DATA SET)
O	WARD TYPE DISCHARGED TO (NATIONAL NEONATAL DATA SET)
M	ORGANISATION SITE IDENTIFIER (RECEIVING POST DISCHARGE FROM NEONATAL CARE)
R	PERSON DEATH TIMESTAMP (DURING NEONATAL CRITICAL CARE PERIOD)
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	PERSON DEATH YEAR AND MONTH (DURING NEONATAL CRITICAL CARE PERIOD)
R	DEATH CAUSE ICD CODE (DURING NEONATAL CRITICAL CARE PERIOD)
R	NEONATAL DEATH CERTIFICATE CATEGORY Or MEDICAL CERTIFICATE OF CAUSE OF DEATH CATEGORY
R	DEATH LOCATION TYPE (NATIONAL NEONATAL DATA SET)
O	CARE PROFESSIONAL POST MORTEM REQUESTED INDICATOR
O	PARENTAL CONSENT TO POST MORTEM INDICATOR
O	DEATH REFERRAL TO CORONER INDICATOR
O	CORONER POST MORTEM REQUESTED INDICATOR
O	RECEIVING OXYGEN THERAPY INDICATOR (ON DISCHARGE FROM NEONATAL CRITICAL CARE)
O	OXYGEN THERAPY AMOUNT CODE (ON DISCHARGE FROM NEONATAL CRITICAL CARE)
O	PARENTERAL NUTRITION RECEIVED INDICATOR (ON DISCHARGE FROM NEONATAL CRITICAL CARE)
O	ORGANISATION SITE IDENTIFIER (OF TWO YEAR NEONATAL OUTCOMES ASSESSMENT FOLLOWING DISCHARGE)
R	DIAGNOSIS (ICD RECORDED ON DISCHARGE FROM NEONATAL CRITICAL CARE) Multiple occurrences of this item are permitted And/Or DIAGNOSIS (SNOMED CT RECORDED ON DISCHARGE FROM NEONATAL CRITICAL CARE) Multiple occurrences of this item are permitted
O	PATIENT DIAGNOSIS INDICATOR (NECROTISING ENTEROCOLITIS)
O	NECROTISING ENTEROCOLITIS CLINICAL AND RADIOLOGICAL DIAGNOSIS Multiple occurrences of this item are permitted
O	NEONATAL PALLIATIVE CARE PLAN IN PLACE INDICATOR (ON DISCHARGE FROM NEONATAL CRITICAL CARE)

Mandation	Procedures Recorded At Discharge To carry details of procedures recorded at discharge.Multiple occurrences of this group are permitted.
R	PROCEDURE (OPCS RECORDED ON DISCHARGE FROM NEONATAL CRITICAL CARE) And/Or PROCEDURE (SNOMED CT RECORDED ON DISCHARGE FROM NEONATAL CRITICAL CARE)
R	CODED PROCEDURE TIMESTAMP (DURING NEONATAL CRITICAL CARE PERIOD)
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	PROCEDURE YEAR AND MONTH (DURING NEONATAL CRITICAL CARE PERIOD)
R	MRI SCAN PERFORMED INDICATOR
R	CODED PROCEDURE TIMESTAMP (MRI SCAN)
R	BRAIN INJURY DETECTED ON MRI SCAN INDICATOR


CLINICAL TRIALS (EPISODIC) To carry details of Clinical Trial enrolment during Neonatal Critical Care.Multiple occurrences of this group are permitted.
Mandation	Data Elements
O	CLINICAL TRIAL NAME
O	CLINICAL TRIAL MEDICATION ADMINISTERED NAME Multiple occurrences of this item are permitted


INFECTION CULTURES (EPISODIC) To carry information relating to Infection Cultures during Neonatal Critical Care.Multiple occurrences of this group are permitted.
Mandation	Data Elements
R	CODED PROCEDURE TIMESTAMP (SAMPLE COLLECTION)
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	SAMPLE COLLECTION YEAR AND MONTH
R	SAMPLE TYPE (NATIONAL NEONATAL DATA SET)
R	CLINICAL SIGN OBSERVED AT SAMPLE COLLECTION Multiple occurrences of this item are permitted
R	SAMPLE TEST RESULT ORGANISM TYPE (SNOMED CT) Multiple occurrences of this item are permitted
R	SAMPLE ANTIBIOTIC SENSITIVITY RESULT (DM+D) Multiple occurrences of this item are permitted


ABDOMINAL X-RAYS (EPISODIC) To carry information relating to Abdominal X-Rays during Neonatal Critical Care.Multiple occurrences of this group are permitted.
Mandation	Data Elements
R	CODED PROCEDURE TIMESTAMP (ABDOMINAL X-RAY)
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	PROCEDURE YEAR AND MONTH (ABDOMINAL X-RAY)
R	ABDOMINAL X-RAY PERFORMED TO INVESTIGATE ABDOMINAL SIGNS INDICATOR
R	CONDITION SEEN IN ABDOMEN DURING X-RAY Multiple occurrences of this item are permitted
R	ABDOMINAL X-RAY PERFORMED REASON Multiple occurrences of this item are permitted
R	TRANSFERRED FROM NEONATAL CRITICAL CARE FOR NECROTISING ENTEROCOLITIS MANAGEMENT INDICATOR
R	LAPAROTOMY FOR NECROTISING ENTEROCOLITIS INDICATION CODE
R	VISUAL INSPECTION CONFIRMED NECROTISING ENTEROCOLITIS DURING LAPAROTOMY INDICATOR
R	HISTOLOGY CONFIRMED NECROTISING ENTEROCOLITIS FOLLOWING LAPAROTOMY INDICATOR
R	PERITONEAL DRAIN INSERTED FOLLOWING ABDOMINAL X-RAY INDICATOR


RETINOPATHY OF PREMATURITY SCREENING (EPISODIC) To carry information relating to Retinopathy of Prematurity Screening during Neonatal Critical Care.Multiple occurrences of this group are permitted.
Mandation	Data Elements
R	CODED PROCEDURE TIMESTAMP (RETINOPATHY OF PREMATURITY SCREENING)
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	PROCEDURE YEAR AND MONTH (RETINOPATHY OF PREMATURITY SCREENING)
R	ORGANISATION SITE IDENTIFIER (OF RETINOPATHY OF PREMATURITY SCREENING)
R	RETINOPATHY OF PREMATURITY STAGE (LEFT EYE)
R	RETINOPATHY OF PREMATURITY STAGE (RIGHT EYE)
R	RETINOPATHY OF PREMATURITY CLOCK HOURS MAXIMUM STAGE (LEFT EYE)
R	RETINOPATHY OF PREMATURITY CLOCK HOURS MAXIMUM STAGE (RIGHT EYE)
R	RETINOPATHY OF PREMATURITY MAXIMUM ZONE (LEFT EYE)
R	RETINOPATHY OF PREMATURITY MAXIMUM ZONE (RIGHT EYE)
R	RETINOPATHY OF PREMATURITY PLUS DISEASE STATUS (LEFT EYE)
R	RETINOPATHY OF PREMATURITY PLUS DISEASE STATUS (RIGHT EYE)
R	RETINOPATHY OF PREMATURITY SCREENING OUTCOME STATUS CODE


CRANIAL ULTRASOUND SCANS (EPISODIC) To carry information relating to Cranial Ultrasound Scans during Neonatal Critical Care.Multiple occurrences of this group are permitted.
Mandation	Data Elements
R	CODED PROCEDURE TIMESTAMP (CRANIAL ULTRASOUND SCAN)
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	PROCEDURE YEAR AND MONTH (CRANIAL ULTRASOUND SCAN)
R	INTRAVENTRICULAR HAEMORRHAGE GRADE (LEFT SIDE)
R	PORENCEPHALIC CYST VISIBLE DURING CRANIAL ULTRASOUND SCAN INDICATOR (LEFT SIDE)
R	VENTRICULAR DILATION DIAGNOSED DURING CRANIAL ULTRASOUND SCAN INDICATOR (LEFT SIDE)
R	INTRAVENTRICULAR HAEMORRHAGE GRADE (RIGHT SIDE)
R	PORENCEPHALIC CYST VISIBLE DURING CRANIAL ULTRASOUND SCAN INDICATOR (RIGHT SIDE)
R	VENTRICULAR DILATION DIAGNOSED DURING CRANIAL ULTRASOUND SCAN INDICATOR (RIGHT SIDE)
R	CYSTIC PERIVENTRICULAR LEUKOMALACIA OBSERVED DURING CRANIAL ULTRASOUND SCAN INDICATOR
R	POST HAEMORRHAGIC HYDROCEPHALUS OBSERVED DURING CRANIAL ULTRASOUND SCAN INDICATOR


NEWBORN BLOOD SPOT TEST (EPISODIC) To carry details of Newborn Blood Spot Test undertaken during Neonatal Critical Care.Multiple occurrences of this group are permitted.
Mandation	Data Elements
R	BLOOD SPOT CARD COMPLETION DATE AND TIME
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	BLOOD SPOT CARD COMPLETION YEAR AND MONTH


NEWBORN HEARING SCREENING (EPISODIC) To carry information relating to Newborn Hearing Screening during Neonatal Critical Care.Multiple occurrences of this group are permitted.
Mandation	Data Elements
R	CODED PROCEDURE TIMESTAMP (NEWBORN HEARING SCREENING)
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	PROCEDURE YEAR AND MONTH (NEWBORN HEARING SCREENING)
R	NEWBORN HEARING SCREENING OUTCOME LEFT EAR (NATIONAL NEONATAL DATA SET)
R	NEWBORN HEARING SCREENING OUTCOME RIGHT EAR (NATIONAL NEONATAL DATA SET)
R	NEWBORN HEARING SCREENING TEST TYPE


NEUROLOGY To carry information relating to Neurology for the baby.One occurrence of this group is permitted.
Mandation	Data Elements
R	CODED OBSERVATION TIMESTAMP (THERAPEUTIC HYPOTHERMIA COOLING TARGET ACHIEVED)
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	PRIMITIVE REFLEXES STATUS
R	CEREBRAL FUNCTION MONITORING BRAIN ACTIVITY RESULT CODE


DAILY CARE INFORMATION
Mandation	Daily Care General Information To carry General Information relating to Daily Care.Multiple occurrences of this group are permitted (at least one occurrence is required).
R	NEONATAL CRITICAL CARE DAILY CARE DATE
R	NUMBER OF MINUTES (BIRTH TO EVENT)
R	NEONATAL CRITICAL CARE DAILY CARE YEAR AND MONTH
M	ORGANISATION SITE IDENTIFIER (OF NEONATAL TREATMENT)
R	PERSON WEIGHT IN GRAMS
O	HEAD CIRCUMFERENCE IN CENTIMETRES
O	PERSON LENGTH IN CENTIMETRES
R	LOCATION OF HIGHEST LEVEL OF CARE (NATIONAL NEONATAL DATA SET)
R	PATIENT RECEIVING ONE TO ONE NURSING CARE INDICATOR
R	CARER RESIDENT INDICATION CODE (NATIONAL NEONATAL DATA SET)
O	BRITISH ASSOCIATION OF PERINATAL MEDICINE CATEGORY OF CARE 2011
R	DIAGNOSIS (ICD ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted And/Or DIAGNOSIS (SNOMED CT ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted
R	PROCEDURE (OPCS ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted And/Or PROCEDURE (SNOMED CT ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted
R	PERSON ACCOMPANYING TRANSPORTED PATIENT (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted

Mandation	Daily Care Respiratory To carry Respiratory information relating to Daily Care. One occurrence of this group is permitted.
R	RESPIRATORY SUPPORT DEVICE TYPE (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted
R	RESPIRATORY SUPPORT MODE (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted
R	NITRIC OXIDE ADMINISTERED INDICATOR
R	CHEST DRAIN IN SITU INDICATOR
R	TRACHEOSTOMY TUBE IN SITU INDICATOR
R	REPLOGLE TUBE IN SITU INDICATOR
R	SURFACTANT ADMINISTERED INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE)
R	FRACTION OF INSPIRED OXYGEN PERCENTAGE
R	OXYGEN ADMINISTERED INDICATOR
R	OXYGEN DELIVERY MODE (NATIONAL NEONATAL DATA SET)
R	PNEUMOTHORAX INDICATOR

Mandation	Daily Care Cardiovascular To carry Cardiovascular information relating to Daily Care.One occurrence of this group is permitted.
R	CONTINUOUS INFUSION OF PULMONARY VASODILATOR RECEIVED INDICATOR
R	INOTROPE INFUSION ADMINISTERED INDICATOR
R	PROSTAGLANDIN INFUSION RECEIVED INDICATOR
R	TREATMENT TYPE (PATENT DUCTUS ARTERIOSUS) Multiple occurrences of this item are permitted
R	EXTRACORPOREAL MEMBRANE OXYGENATION RECEIVED INDICATOR

Mandation	Daily Care Gastrointestinal To carry Gastrointestinal information relating to Daily Care.One occurrence of this group is permitted.
R	PERITONEAL DIALYSIS RECEIVED INDICATOR
R	HAEMOFILTRATION PERFORMED INDICATOR
R	TREATMENT TYPE (NECROTISING ENTEROCOLITIS)
R	NUMBER OF RECTAL WASHOUTS
R	STOMA WITH COLOSTOMY BAG IN SITU INDICATOR
R	GASTROSCHISIS SILO IN SITU INDICATOR

Mandation	Daily Care Blood Transfusion To carry Blood Transfusion information relating to Daily Care.Multiple occurrences of this group are permitted.
R	BLOOD TRANSFUSION TYPE
R	BLOOD TRANSFUSION PRODUCT TYPE Multiple occurrences of this item are permitted

Mandation	Daily Care Neurology To carry Neurology information relating to Daily Care.One occurrence of this group is permitted.
R	CENTRAL TONE STATUS
R	NEONATAL CONSCIOUSNESS STATUS
R	SEIZURE OCCURRED INDICATOR
R	NEONATAL ABSTINENCE SYNDROME OBSERVED INDICATOR
R	TREATMENT TYPE (NEONATAL ABSTINENCE SYNDROME)
R	VENTRICULOPERITONEAL SHUNT SURGERY PERFORMED INDICATOR
R	BRAIN ACTIVITY SCAN PERFORMED INDICATOR
R	ACTIVE COOLING INDICATOR
R	PASSIVE COOLING INDICATOR
R	EPIDURAL CATHETER IN SITU INDICATOR
R	VENTRICULAR TAP PERFORMED INDICATOR
R	EXTERNAL VENTRICULAR DRAIN INSERTED INDICATOR
R	HYPOXIC ISCHEMIC ENCEPHALOPATHY GRADE (HIGHEST ON NEONATAL CRITICAL CARE DAILY CARE DATE)

Mandation	Daily Care Ophthalmology relating to Daily Care Daily Care Ophthalmology relating to Daily Care.One occurrence of this group is permitted.
R	RETINOPATHY OF PREMATURITY SCREENING PERFORMED INDICATOR
R	RETINOPATHY OF PREMATURITY SURGICAL PROCEDURE PERFORMED INDICATOR

Mandation	Daily Care Fluids and Feeding To carry Fluids and Feeding information relating to Daily Care.One occurrence of this group is permitted.
R	VASCULAR LINE TYPE IN SITU Multiple occurrences of this item are permitted
R	PARENTERAL NUTRITION RECEIVED INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE)
R	INTRAVENOUS INFUSION OF GLUCOSE AND ELECTROLYTE SOLUTION ADMINISTERED INDICATOR
R	ENTERAL FEED TYPE GIVEN Multiple occurrences of this item are permitted
R	FORMULA MILK OR MILK FORTIFIER TYPE (DM+D) Multiple occurrences of this item are permitted
R	TOTAL VOLUME OF MILK RECEIVED
O	ENTERAL FEEDING METHOD Multiple occurrences of this item are permitted
R	HYPOGLYCAEMIA TREATMENT INDICATOR
R	TREATMENT TYPE (HYPOGLYCAEMIA)
R	BLOOD GLUCOSE CONCENTRATION (ON NEONATAL CRITICAL CARE DAILY CARE DATE)
R	TRANSANASTOMOTIC FEEDING TUBE IN SITU INDICATOR

Mandation	Daily Care Infections To carry Infection information relating to Daily Care.One occurrence of this group is permitted.
R	SEPSIS SUSPECTED INDICATOR

Mandation	Daily Care Jaundice To carry Jaundice information relating to Daily Care.One occurrence of this group is permitted.
R	PHOTOTHERAPY RECEIVED INDICATOR
R	MAXIMUM BILIRUBIN LEVEL

Mandation	Daily Care Medication To carry Medication Administered information relating to Daily Care.One occurrence of this group is permitted.
R	MEDICATION ADMINISTERED ON NEONATAL CRITICAL CARE DAILY CARE DATE (DM+D) Multiple occurrences of this item are permitted

Mandation	Daily Care Renal Genito-urinary To carry Renal Genito-urinary information relating to Daily Care.One occurrence of this group is permitted.
R	URINARY CATHETER IN SITU INDICATOR

Also Known As

This data set is also known by these names:

Context	Alias
Short name	Episodic and Daily Care