National Neonatal Data Set - Episodic and Daily Care
National Neonatal Data Set - Episodic and Daily Care
Overview
Introduction
The National Neonatal Data Set consists of a defined list of data items that are extracted from electronic clinical records created by clinical staff on all admissions to NHS Neonatal Units in England, Wales and Scotland.
The National Neonatal Data Set is in two parts:
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The National Neonatal Data Set - Episodic and Daily Care covers the period of time a baby is cared for in a Neonatal Unit regardless of the designation (Neonatal Intensive Care Unit, Local Neonatal Unit, Special Care Baby Unit, Transitional Care Unit)
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The National Neonatal Data Set - Two Year Neonatal Outcomes Assessment covers data relating to a Two Year Neonatal Outcomes Assessment carried out on the same child approximately two years after their stay in a Neonatal Unit.
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The Two Year Neonatal Outcomes Assessment may be carried out by the same ORGANISATION responsible for the Neonatal Unit admission or a different ORGANISATION.
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The two neonatal data sets comprise data items relating to PATIENT demographics, CLINICAL INTERVENTIONS, outcomes, and PATIENT DIAGNOSES. Each data item is mapped or in the process of being mapped where possible to existing Information Standards and Data Collections (including Extractions) (such as the Neonatal Critical Care Minimum Data Set and Maternity Services Data Set) as well as to SNOMED CT and ICD codes.
The National Neonatal Data Set consists of a defined list of data items that are extracted from electronic clinical records created by clinical staff relating to all admissions to a Neonatal Unit in England, Wales and Scotland. The Neonatal Data Analysis Unit has established a database, the National Neonatal Research Database, to hold data comprising the National Neonatal Data Set, as a national resource, to serve a variety of needs, so avoiding duplicate data collections for different purposes, minimising the burden placed upon clinical teams, and promoting data quality and completeness.
Submission Information
Identifiable information (i.e. PERSON IDENTIFIERS, such as NHS NUMBER) is pseudonymised by the System Supplier before being submitted to the Neonatal Data Analysis Unit. These pseudonymised data items are listed alongside their identifiable counterparts in the National Neonatal Data Set. Only data from PATIENTS whose parents have not opted-out of secondary uses of their babies data will flow to the Neonatal Data Analysis Unit.
Where anonymisation is required, the dates and times of events carried throughout the data set (such as CODED PROCEDURE TIMESTAMP (SAMPLE COLLECTION), CODED PROCEDURE TIMESTAMP (ABDOMINAL X-RAY) should be replaced with the specific relevant year and month of the event and the NUMBER OF MINUTES (BIRTH TO EVENT).
Further Guidance
Further guidance has been produced by the Neonatal Data Analysis Unit and is available on their website at: Neonatal Data Analysis Unit.
Mandation
The Mandation column indicates the recommendation for the inclusion of data.
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M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
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R = Required: NHS business processes cannot be delivered without this data element
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O = Optional: the inclusion of this data element is optional as required for local purposes
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P = Pilot: this data element is for piloting use only.
Note: items in the Mandation column which are shown with notation P are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set. These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.
Specification
DEMOGRAPHICS AND BIRTH INFORMATION (BABY)
To carry the Baby's demographic details.One occurrence of this group is required. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
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R |
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R |
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M |
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R |
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R |
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R |
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P |
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M |
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R |
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O |
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O |
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R |
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R |
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R |
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R |
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O |
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O |
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R |
BASE DEFICIT CONCENTRATION (WORST WITHIN 12 HOURS AFTER BIRTH) |
PARENTS
To carry the Parent's demographic details.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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O |
HIGHEST EDUCATION ENROLMENT LEVEL MOTHER (NATIONAL NEONATAL DATA SET) |
O |
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R |
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P |
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R |
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R |
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R |
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P |
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R |
LABOUR AND DELIVERY
To carry details of the labour and delivery.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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O |
MEDICATION ADMINISTERED DURING LABOUR (DM+D) Multiple occurrences of this item are permitted |
R |
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R |
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R |
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O |
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R |
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R |
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R |
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R |
Multiple occurrences of this item are permitted |
R |
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R |
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O |
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R |
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R |
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R |
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R |
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O |
NEONATAL RESUSCITATION DRUG (DM+D) Multiple occurrences of this item are permitted |
R |
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R |
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O |
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O |
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O |
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O |
UMBILICAL CORD BLOOD PARTIAL PRESSURE CARBON DIOXIDE (ARTERIAL) |
O |
UMBILICAL CORD BLOOD PARTIAL PRESSURE CARBON DIOXIDE (VENOUS) |
O |
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O |
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O |
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R |
SURFACTANT ADMINISTERED INDICATOR (DURING INITIAL MANAGEMENT) |
R |
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R |
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R |
ADMISSION TO NEONATAL CRITICAL CARE
To carry details of the admission to Neonatal Critical Care.One occurrence of this group is required. |
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Mandation |
Data Elements |
M |
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R |
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R |
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M |
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R |
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R |
ORGANISATION SITE IDENTIFIER (ADMITTED FROM TO NEONATAL UNIT) |
O |
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R |
PRIMARY CATEGORY OF CARE REQUIRED ON ADMISSION TO NEONATAL CRITICAL CARE |
R |
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R |
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R |
TEMPERATURE RECORDED AFTER ADMISSION TO NEONATAL CRITICAL CARE INDICATOR |
M |
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R |
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R |
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R |
MEAN ARTERIAL BLOOD PRESSURE (ON ADMISSION TO NEONATAL CRITICAL CARE) |
R |
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O |
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O |
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O |
BLOOD GLUCOSE CONCENTRATION (ON ADMISSION TO NEONATAL CRITICAL CARE) |
R |
DIAGNOSIS (ICD ON ADMISSION TO NEONATAL CRITICAL CARE) Multiple occurrences of this item are permitted And/Or DIAGNOSIS (SNOMED CT ON ADMISSION TO NEONATAL CRITICAL CARE) Multiple occurrences of this item are permitted |
O |
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O |
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O |
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M |
PARENTS SEEN BY SENIOR STAFF MEMBER WITHIN 24 HOURS OF ADMISSION INDICATOR |
R |
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R |
CLINICAL TRIALS (EPISODIC)
To carry details of Clinical Trial enrolment during Neonatal Critical Care.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
O |
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O |
CLINICAL TRIAL MEDICATION ADMINISTERED NAME Multiple occurrences of this item are permitted |
INFECTION CULTURES (EPISODIC)
To carry information relating to Infection Cultures during Neonatal Critical Care.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
CLINICAL SIGN OBSERVED AT SAMPLE COLLECTION Multiple occurrences of this item are permitted |
R |
SAMPLE TEST RESULT ORGANISM TYPE (SNOMED CT) Multiple occurrences of this item are permitted |
R |
SAMPLE ANTIBIOTIC SENSITIVITY RESULT (DM+D) Multiple occurrences of this item are permitted |
ABDOMINAL X-RAYS (EPISODIC)
To carry information relating to Abdominal X-Rays during Neonatal Critical Care.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
ABDOMINAL X-RAY PERFORMED TO INVESTIGATE ABDOMINAL SIGNS INDICATOR |
R |
CONDITION SEEN IN ABDOMEN DURING X-RAY Multiple occurrences of this item are permitted |
R |
ABDOMINAL X-RAY PERFORMED REASON Multiple occurrences of this item are permitted |
R |
TRANSFERRED FROM NEONATAL CRITICAL CARE FOR NECROTISING ENTEROCOLITIS MANAGEMENT INDICATOR |
R |
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R |
VISUAL INSPECTION CONFIRMED NECROTISING ENTEROCOLITIS DURING LAPAROTOMY INDICATOR |
R |
HISTOLOGY CONFIRMED NECROTISING ENTEROCOLITIS FOLLOWING LAPAROTOMY INDICATOR |
R |
PERITONEAL DRAIN INSERTED FOLLOWING ABDOMINAL X-RAY INDICATOR |
RETINOPATHY OF PREMATURITY SCREENING (EPISODIC)
To carry information relating to Retinopathy of Prematurity Screening during Neonatal Critical Care.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
R |
CODED PROCEDURE TIMESTAMP (RETINOPATHY OF PREMATURITY SCREENING) |
R |
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R |
PROCEDURE YEAR AND MONTH (RETINOPATHY OF PREMATURITY SCREENING) |
R |
ORGANISATION SITE IDENTIFIER (OF RETINOPATHY OF PREMATURITY SCREENING) |
R |
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R |
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R |
RETINOPATHY OF PREMATURITY CLOCK HOURS MAXIMUM STAGE (LEFT EYE) |
R |
RETINOPATHY OF PREMATURITY CLOCK HOURS MAXIMUM STAGE (RIGHT EYE) |
R |
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R |
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R |
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R |
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R |
CRANIAL ULTRASOUND SCANS (EPISODIC)
To carry information relating to Cranial Ultrasound Scans during Neonatal Critical Care.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
PORENCEPHALIC CYST VISIBLE DURING CRANIAL ULTRASOUND SCAN INDICATOR (LEFT SIDE) |
R |
VENTRICULAR DILATION DIAGNOSED DURING CRANIAL ULTRASOUND SCAN INDICATOR (LEFT SIDE) |
R |
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R |
PORENCEPHALIC CYST VISIBLE DURING CRANIAL ULTRASOUND SCAN INDICATOR (RIGHT SIDE) |
R |
VENTRICULAR DILATION DIAGNOSED DURING CRANIAL ULTRASOUND SCAN INDICATOR (RIGHT SIDE) |
R |
CYSTIC PERIVENTRICULAR LEUKOMALACIA OBSERVED DURING CRANIAL ULTRASOUND SCAN INDICATOR |
R |
POST HAEMORRHAGIC HYDROCEPHALUS OBSERVED DURING CRANIAL ULTRASOUND SCAN INDICATOR |
NEWBORN BLOOD SPOT TEST (EPISODIC)
To carry details of Newborn Blood Spot Test undertaken during Neonatal Critical Care.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
NEWBORN HEARING SCREENING (EPISODIC)
To carry information relating to Newborn Hearing Screening during Neonatal Critical Care.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
NEWBORN HEARING SCREENING OUTCOME LEFT EAR (NATIONAL NEONATAL DATA SET) |
R |
NEWBORN HEARING SCREENING OUTCOME RIGHT EAR (NATIONAL NEONATAL DATA SET) |
R |
NEUROLOGY
To carry information relating to Neurology for the baby.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
CODED OBSERVATION TIMESTAMP (THERAPEUTIC HYPOTHERMIA COOLING TARGET ACHIEVED) |
R |
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R |
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R |
DAILY CARE INFORMATION | |
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Mandation |
Daily Care General Information
To carry General Information relating to Daily Care.Multiple occurrences of this group are permitted (at least one occurrence is required). |
R |
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R |
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R |
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M |
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R |
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O |
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O |
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R |
LOCATION OF HIGHEST LEVEL OF CARE (NATIONAL NEONATAL DATA SET) |
R |
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R |
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O |
BRITISH ASSOCIATION OF PERINATAL MEDICINE CATEGORY OF CARE 2011 |
R |
DIAGNOSIS (ICD ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted And/Or DIAGNOSIS (SNOMED CT ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted |
R |
PROCEDURE (OPCS ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted And/Or PROCEDURE (SNOMED CT ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted |
R |
PERSON ACCOMPANYING TRANSPORTED PATIENT (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted |
Mandation |
Daily Care Respiratory
To carry Respiratory information relating to Daily Care. One occurrence of this group is permitted. |
R |
RESPIRATORY SUPPORT DEVICE TYPE (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted |
R |
RESPIRATORY SUPPORT MODE (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted |
R |
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R |
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R |
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R |
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R |
SURFACTANT ADMINISTERED INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE) |
R |
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R |
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R |
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R |
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Mandation |
Daily Care Cardiovascular
To carry Cardiovascular information relating to Daily Care.One occurrence of this group is permitted. |
R |
CONTINUOUS INFUSION OF PULMONARY VASODILATOR RECEIVED INDICATOR |
R |
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R |
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R |
TREATMENT TYPE (PATENT DUCTUS ARTERIOSUS) Multiple occurrences of this item are permitted |
R |
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Mandation |
Daily Care Gastrointestinal
To carry Gastrointestinal information relating to Daily Care.One occurrence of this group is permitted. |
R |
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R |
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R |
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R |
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R |
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R |
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Mandation |
Daily Care Blood Transfusion
To carry Blood Transfusion information relating to Daily Care.Multiple occurrences of this group are permitted. |
R |
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R |
BLOOD TRANSFUSION PRODUCT TYPE Multiple occurrences of this item are permitted |
Mandation |
Daily Care Neurology
To carry Neurology information relating to Daily Care.One occurrence of this group is permitted. |
R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
HYPOXIC ISCHEMIC ENCEPHALOPATHY GRADE (HIGHEST ON NEONATAL CRITICAL CARE DAILY CARE DATE) |
Mandation |
Daily Care Ophthalmology relating to Daily Care
Daily Care Ophthalmology relating to Daily Care.One occurrence of this group is permitted. |
R |
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R |
RETINOPATHY OF PREMATURITY SURGICAL PROCEDURE PERFORMED INDICATOR |
Mandation |
Daily Care Fluids and Feeding
To carry Fluids and Feeding information relating to Daily Care.One occurrence of this group is permitted. |
R |
Multiple occurrences of this item are permitted |
R |
PARENTERAL NUTRITION RECEIVED INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE) |
R |
INTRAVENOUS INFUSION OF GLUCOSE AND ELECTROLYTE SOLUTION ADMINISTERED INDICATOR |
R |
Multiple occurrences of this item are permitted |
R |
FORMULA MILK OR MILK FORTIFIER TYPE (DM+D) Multiple occurrences of this item are permitted |
R |
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O |
Multiple occurrences of this item are permitted |
R |
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R |
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R |
BLOOD GLUCOSE CONCENTRATION (ON NEONATAL CRITICAL CARE DAILY CARE DATE) |
R |
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Mandation |
Daily Care Infections
To carry Infection information relating to Daily Care.One occurrence of this group is permitted. |
R |
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Mandation |
Daily Care Jaundice
To carry Jaundice information relating to Daily Care.One occurrence of this group is permitted. |
R |
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R |
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Mandation |
Daily Care Medication
To carry Medication Administered information relating to Daily Care.One occurrence of this group is permitted. |
R |
MEDICATION ADMINISTERED ON NEONATAL CRITICAL CARE DAILY CARE DATE (DM+D) Multiple occurrences of this item are permitted |
Mandation |
Daily Care Renal Genito-urinary
To carry Renal Genito-urinary information relating to Daily Care.One occurrence of this group is permitted. |
R |
Also Known As
This data set is also known by these names:
Context | Alias |
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Short name | Episodic and Daily Care |