HIV and AIDS Reporting Data Set

Overview

Introduction

The scope of the HIV and AIDS Reporting Data Set is all PATIENTS who are diagnosed with Human Immunodeficiency Virus (HIV) and receive HIV care from Health Care Providers.

NHS Health Care Providers are required to generate the HIV and AIDS Reporting Data Set.

The HIV and AIDS Reporting Data Set is used to:

Identify the groups at risk of HIV infection in England
Monitor the short and long term clinical outcomes of people living with HIV infection
Monitor the effectiveness of the national policies and guidance
Adapt and refine interventions, as appropriate.

Secondary analyses of aggregate outputs from the HIV and AIDS Reporting Data Set will be used to:

Support the commissioning of HIV Services through collation of data to inform the national HIV outpatient tariff for the National Tariff Payment System
Conduct performance management at the Local Authority and national level.

For further information on Acquired Immune Deficiency Syndrome (AIDS) and Human Immunodeficiency Virus (HIV), see the Public Health England part of the gov.uk website.

Time period

The extract covers one calendar quarter.

Frequency:

The HIV and AIDS Reporting Data Set is attendance based and should be submitted quarterly, 2 weeks after the end of the quarter.

Format

Data for submission will be formatted into an xml file as per the HIV and AIDS Reporting Data Set XML Schema.

Transmission

Submissions should be transmitted to Public Health England through a secure web portal on the Public Health England (PHE) website, using the HARS Data Set XML Schema.

The web portal enables ORGANISATIONS to submit data files in a secure manner to the HIV and STI Department of Public Health England across the internet and can be found at HIV & STI Web Portal.

For further information on the HIV and AIDS Reporting Data Set, see the Public Health England part of the gov.uk website at: HIV surveillance systems.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
R = Required: NHS business processes cannot be delivered without this data element
O = Optional: the inclusion of this data element is optional as required for local purposes.

XML Schema

For guidance on the XML Schema constraints, see the HIV and AIDS Reporting Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

Specification


SUBMISSION IDENTIFIER To carry the submission header details.One occurrence of this group is required.
Mandation	Data Elements
M	HARS SUBMISSION IDENTIFIER
M	HARS SUBMISSION RECORD COUNT
M	REPORTING PERIOD START DATE
M	REPORTING PERIOD END DATE
M	HARS MESSAGE VERSION IDENTIFIER
M	ORGANISATION CODE (CODE OF SUBMITTING ORGANISATION)
M	DATE AND TIME DATA SET CREATED
M	HARS TEST INDICATOR


RECORD IDENTIFIER To carry the record identifier details.One occurrence of this group is required.
Mandation	Data Elements
M	HARS UNIQUE IDENTIFIER


PERSONAL AND DEMOGRAPHIC To carry personal and demographic details for the patient.One occurrence of this group is required.
Mandation	Data Elements
M	LOCAL PATIENT IDENTIFIER (EXTENDED)
R	GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION)
R	PATIENT CONSENT OBTAINED INDICATOR (CARE PROFESSIONAL CONTACT)
R	YEAR AND MONTH OF LAST CARE PROFESSIONAL HIV COMMUNICATION
M	PERSON SURNAME SOUNDEX CODE
R	PERSON INITIAL (FIRST)
R	PERSON BIRTH DATE
M	GENDER IDENTITY CODE (SEXUAL HEALTH)
M	GENDER IDENTITY SAME AT BIRTH INDICATOR
R	ETHNIC CATEGORY
R	COUNTRY CODE (BIRTH)
M	LOWER LAYER SUPER OUTPUT AREA (PERSON RESIDENCE)
R	PRISONER INDICATOR
R	CURRENT SEX WORKER INDICATOR
R	DISABILITY CODE


SERVICE INFORMATION To carry service information details for the patient.One occurrence of this group is permitted.
Mandation	Data Elements
M	ORGANISATION CODE (CODE OF PROVIDER)
M	SITE CODE (OF TREATMENT)
M	PATIENT HIV CARE STATUS
R	SITE CODE (OF PREVIOUS HIV CARE)
R	SITE CODE (REFERRED TO FOR SHARED HIV CARE)


HIV CLINIC ATTENDANCE To carry clinic attendance details for the patient.One occurrence of this group is required.
Mandation	Data Elements
R	CONSULTATION MEDIUM USED
R	CLINIC ATTENDANCE PURPOSE CODE (HIV)
R	CARE PROFESSIONAL TYPE (HIV)
M	ATTENDANCE DATE


DIAGNOSIS To carry diagnosis details for the patient.One occurrence of this group is required.
Mandation	Data Elements
M	NEW HIV DIAGNOSIS IN UNITED KINGDOM INDICATOR
M	DIAGNOSIS DATE IN UNITED KINGDOM (HIV)
O	YEAR OF DIAGNOSIS OUTSIDE UNITED KINGDOM (HIV)
M	DATE FIRST SEEN
M	PATIENT EXPOSURE TO HIV
R	COUNTRY CODE (HIV INFECTION)
R	YEAR OF UK ENTRY
R	INITIAL DIAGNOSIS CARE SETTING OR SERVICE (HIV)
R	PREVIOUS NEGATIVE HIV TEST INDICATOR
R	YEAR AND MONTH OF LAST NEGATIVE HIV TEST
R	PATIENT DIAGNOSIS INDICATOR (SEROCONVERSION ILLNESS)
R	TEST OF RECENT INFECTION RESULT (HIV)
R	NUMBER OF HIV CONTACTS
R	NUMBER OF HIV CONTACTABLE CONTACTS
R	NUMBER OF HIV CONTACTABLE CONTACTS TESTED FOR HIV


TREATMENT To carry treatment details for the patient.One occurrence of this group is permitted.
Mandation	Data Elements
M	FIRST ANTIRETROVIRAL THERAPY IN UNITED KINGDOM INDICATOR
R	YEAR AND MONTH FIRST STARTED ANTIRETROVIRAL THERAPY
R	START DATE (ANTIRETROVIRAL THERAPY AT CURRENT PROVIDER)
R	POST-EXPOSURE PROPHYLAXIS INDICATOR
R	PRE-EXPOSURE PROPHYLAXIS INDICATOR
R	ANTIRETROVIRAL THERAPY DRUG (SNOMED CT DM+D)
M	ANTIRETROVIRAL THERAPY DRUG REGIMEN GROUP CODE
R	ANTIRETROVIRAL THERAPY HOME DELIVERY INDICATOR


CLINICAL INFORMATION To carry clinical information details for the patient.One occurrence of this group is required.
Mandation	Data Elements
M	CD4 CELL COUNT PERFORMED INDICATOR
R	CD4 CELL COUNT
M	VIRAL LOAD COUNT PERFORMED INDICATOR
R	VIRAL LOAD COUNT
R	AIDS DEFINING ILLNESS CODE ADULT (SNOMED CT)
M	PATIENT DIAGNOSIS INDICATOR (VIRAEMIA)
M	TUBERCULOSIS TREATMENT INDICATOR (HIV)
M	CHRONIC VIRAL LIVER DISEASE TREATMENT INDICATOR (HIV)
M	HEPATITIS B INFECTION INDICATION CODE
M	HEPATITIS C INFECTION INDICATION CODE
M	MALIGNANCY TREATMENT INDICATOR (HIV)
M	PATIENT DIAGNOSIS INDICATOR (HIV END ORGAN DISEASE)
M	PSYCHIATRIC CARE INDICATOR (HIV)
M	PREGNANCY INDICATOR (HIV)
M	SOCIAL WORKER CARE INDICATOR (HIV)
O	LATENT TUBERCULOSIS TEST PERFORMED INDICATOR
R	OFFER STATUS (HUMAN PAPILLOMAVIRUS VACCINATION)
R	HUMAN PAPILLOMAVIRUS VACCINATION DOSE GIVEN


DEATH To carry death details for the patient.One occurrence of this group is permitted.
Mandation	Data Elements
R	PERSON DEATH DATE
R	DEATH CAUSE ICD CODE (CARE PROFESSIONAL REPORTED)

Also Known As

This data set is also known by these names:

Context	Alias
Also known as	HARS
Schema	HARS
Short name	HIV and AIDS Reporting