Cancer Outcomes and Services Data Set - Pathology
PathologyFrom January 2016 Pathology Laboratories across England were mandated through DCB1521 17/2014, to collect and return structured pathology using the COSDS XML Schema.
Overview
Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
Introduction
The Cancer Outcomes and Services Data Set is a compiled data set which provides the standard for secondary uses information required to support national cancer registration and associated analysis (at local, regional, national and international level), as well as other national cancer audit programmes.
The standard and XML Schema consists of:
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a set of individual data items, with their definitions
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the assemblage of data items into discrete data sets
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the means of flowing the data items
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compilation of the data items into a reconciled and verified data set.
Additionally, the output supports commissioning and service development through provision of relevant information on service delivery and outcomes.
All PATIENTS diagnosed with or receiving cancer treatment in or funded by the NHS in England are covered by the standard. This includes adult and paediatric cancer PATIENTS. The standard applies to all ORGANISATIONS providing Cancer Services within secondary care. It does not apply to general practice ORGANISATIONS.
The Cancer Outcomes and Services Data Set covers diseases as defined by the United Kingdom and Ireland Association of Cancer Registries (UKIACR) as described in the User Guide at Appendix A and B.
Unless otherwise specified, the term cancer is used throughout the standard and related documents to cover all conditions registerable by the United Kingdom and Ireland Association of Cancer Registries.
Submission Information
Providers of Cancer Services are required to provide a monthly return on all cancer PATIENTS using the Cancer Outcomes and Services Data Set.
The Cancer Outcomes and Services Data Set is submitted to the National Cancer Registration and Analysis Service (NCRAS) using the COSDS XML Schema.
While the core and cancer site specific data sets are shown as separate data sets within the NHS Data Model and Dictionary, the COSDS XML Schema integrates each core and cancer site specific set of data elements. Documentation provided on the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary XML Schemas gives full details of the specification.
For all diagnoses not covered by a cancer site specific data set, only the Core Data Set should be completed. A full list of diagnoses mapped to the appropriate data set is provided in the National Cancer Registration and Analysis Service User Guide.
Pathology
From January 2016 Pathology Laboratories across England were mandated through DCB1521 17/2014, to collect and return structured pathology using the COSDS XML Schema.
This replaced the current reporting to the National Cancer Registration and Analysis Service of electronic pathology reports which were then transcribed by the National Cancer Registration and Analysis Service into the Cancer Registration Reports. This also prevented Cancer Service teams, for example, Multidisciplinary Teams, Pathway Co-ordinators, duplicating the work, which had been happening as part of their data collection process.
From April 2020, the pathology data can only be collected and submitted using the separate Pathology Data Set and Pathology XML Schema. Pathology data items have been removed from the main Cancer Outcomes and Services Data Set.
This allows the Cancer Service teams to concentrate on collecting and reporting all the other clinical data required for the Cancer Outcomes and Services Data Set and the Pathologists to collect and report the pathology items. This will reduce the burden of data collection for the Cancer Service teams and allow for more accurate pathology reporting to be submitted to the National Cancer Registration and Analysis Service.
There will be no requirement for Pathology Laboratories to double report. Once their Laboratory Information Management Systems (LIMS) are updated to report in the COSDS XML Schema, all other pathology reporting can cease.
Further Guidance
Further guidance for submission of the Cancer Outcomes and Services Data Set is provided by the National Cancer Registration and Analysis Service at Cancer Outcomes and Services Dataset.
Mandation
The Mandation column indicates the recommendation for the inclusion of data.
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M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
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R = Required: NHS business processes cannot be delivered without this data element
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O = Optional: the inclusion of this data element is optional as required for local purposes.
XML Schema
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
Specification
SUBMISSION HEADER
To carry the submission header details.One occurrence of this group is required. |
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Mandation |
Data Elements |
M |
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M |
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M |
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M |
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M |
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M |
RECORD IDENTIFIER
To carry the record identifier details.One occurrence of this group is required. |
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Mandation |
Data Elements |
M |
LINKAGE IDENTIFIER CHOICE - CORE - PATHOLOGY | |
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Mandation |
CHOICE 1 - NHS NUMBER
To carry patient identity details for linkage.One occurrence of this group is required. |
M |
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Or | |
Mandation |
CHOICE 2 - LOCAL PATIENT IDENTIFIER
To carry patient identity details for linkage.One occurrence of this group is required. |
M |
LINKAGE IDENTIFIER - CORE - PATHOLOGY
To carry patient identity details for linkage.One occurrence of this group is required. |
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Mandation |
Data Elements |
M |
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M |
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M |
DEMOGRAPHICS - CORE - PATHOLOGY
To carry patient demographic details.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
PATIENT USUAL ADDRESS (AT DIAGNOSIS) - ADDRESS STRUCTURED Or |
R |
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R |
PATHOLOGY DETAILS PART 1 - CORE - PATHOLOGY
To carry pathology details.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
M |
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M |
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R |
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R |
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M |
PROFESSIONAL REGISTRATION ISSUER CODE (PATHOLOGY TEST REQUESTED BY) |
M |
PROFESSIONAL REGISTRATION ENTRY IDENTIFIER (PATHOLOGY TEST REQUESTED BY) |
R |
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R |
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R |
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R |
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M |
PROFESSIONAL REGISTRATION ISSUER CODE (PATHOLOGY REPORT AUTHORISED BY) |
M |
PROFESSIONAL REGISTRATION ENTRY IDENTIFIER (PATHOLOGY REPORT AUTHORISED BY) |
R |
TOPOGRAPHY/MORPHOLOGY - CORE - PATHOLOGY
To carry Topography/Morphology SNOMED pathology details.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
M |
TOPOGRAPHY/MORPHOLOGY CHOICE - CORE - PATHOLOGY | |
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Mandation |
CHOICE 1 - TOPOGRAPHY SNOMED
To carry pathology Topography SNOMED details.One occurrence of this group is required. |
M |
Multiple occurrences of this item are permitted |
Or | |
Mandation |
CHOICE 2 - MORPHOLOGY SNOMED
To carry pathology Morphology SNOMED details.One occurrence of this group is required. |
M |
Multiple occurrences of this item are permitted |
PATHOLOGY DETAILS PART 2 CORE - PATHOLOGY
To carry pathology details.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
R |
Multiple occurrences of this item are permitted |
R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
MLH1 IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE |
R |
PMS2 IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE |
R |
MSH2 IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE |
R |
MSH6 IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE |
R |
BREAST - PATHOLOGY
To carry pathology details for Breast cancer.One occurrence of this data group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
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R |
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O |
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R |
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O |
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O |
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R |
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R |
HUMAN EPIDERMAL GROWTH FACTOR IN SITU HYBRIDISATION RECEPTOR STATUS (BREAST) |
R |
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R |
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R |
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R |
CENTRAL NERVOUS SYSTEM (CNS) - PATHOLOGY
To carry pathology details for Central Nervous System (CNS) cancer.One occurrence of this data group is permitted. |
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Mandation |
Data Elements |
R |
Multiple occurrences of this item are permitted |
R |
Multiple occurrences of this item are permitted |
COLORECTAL - PATHOLOGY
To carry pathology details for Colorectal cancer.One occurrence of this data group is permitted. |
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Mandation |
Data Elements |
R |
MARGIN INVOLVED INDICATION CODE (COLORECTAL PROXIMAL OR DISTAL RESECTION MARGIN) |
R |
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R |
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R |
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R |
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R |
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R |
CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA): RENAL PATHOLOGY (PAEDIATRIC KIDNEY) - PATHOLOGY
To carry renal (paediatric kidney) pathology details for Children, Teenagers, and Young Adults (CTYA) cancer.One occurrence of this data group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
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R |
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R |
INTERNATIONAL SOCIETY OF PAEDIATRIC ONCOLOGY TUMOUR LOCAL STAGE |
GYNAECOLOGICAL - PATHOLOGY
To carry pathology details for Gynaecological cancer.One occurrence of this data group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
GYNAECOLOGICAL: FALLOPIAN TUBE, OVARIAN EPITHELIAL AND PRIMARY PERITONEAL - PATHOLOGY
To carry pathology details for Gynaecological cancer for Fallopian Tube, Ovarian Epithelial and Primary Peritoneal.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
GYNAECOLOGICAL: ENDOMETRIAL - PATHOLOGY
To carry pathology details for Gynaecological cancer for Endometrial.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
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R |
GYNAECOLOGICAL: CERVICAL - PATHOLOGY
To carry pathology details for Gynaecological cancer for Cervical.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
CERVICAL GLANDULAR INTRAEPITHELIAL NEOPLASIA PRESENCE AND GRADE |
R |
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R |
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R |
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R |
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R |
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R |
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R |
GYNAECOLOGICAL: NODES - PATHOLOGY
To carry pathology details for Gynaecological cancer for Nodes.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
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R |
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R |
HEAD AND NECK: VARIOUS - PATHOLOGY
To carry pathology details for various Head and Neck cancers.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
HEAD AND NECK: SALIVARY - PATHOLOGY
To carry salivary pathology details for Head and Neck cancer.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
M |
HEAD AND NECK: GENERAL AND SALIVARY - PATHOLOGY
To carry general and salivary pathology details for Head and Neck cancer.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
HEAD AND NECK: HUMAN PAPILLOMAVIRUS (HPV) - PATHOLOGY
To carry human papilloma virus pathology details for Head and Neck cancer.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
LUNG - PATHOLOGY
To carry pathology details for Lung cancer.One occurrence of this data group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
SARCOMA: BONE AND SOFT TISSUE - PATHOLOGY
To carry pathology details for Sarcoma for Bone and Soft Tissue.One occurrence of this data group is permitted. |
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Mandation |
Data Elements |
R |
SARCOMA: BONE - PATHOLOGY
To carry pathology details for Sarcoma for Bone.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
SARCOMA: SOFT TISSUE - PATHOLOGY
To carry pathology details for Sarcoma for Soft Tissue.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
SKIN: BASAL CELL CARCINOMAS (BCC) - PATHOLOGY
To carry pathology details for Basal Cell Carcinoma (BCC) for skin cancer.One occurrence of this group is required. |
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Mandation |
Data Elements |
R |
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R |
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R |
SKIN: SQUAMOUS CELL CARCINOMA (SCC) - PATHOLOGY
To carry pathology details for Squamous Cell Carcinoma (SCC) for skin cancer.One occurrence of this group is required. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
SKIN: MALIGNANT MELANOMA (MM) - PATHOLOGY
To carry pathology details for Malignant Melanoma (MM) for skin cancer.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
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R |
NUMBER OF NODES SAMPLED (POST SENTINEL NODE COMPLETION LYMPHADENECTOMY) |
R |
NUMBER OF NODES POSITIVE (POST SENTINEL NODE COMPLETION LYMPHADENECTOMY) |
UPPER GASTROINTESTINAL (GI): VARIOUS - PATHOLOGY
To carry pathology details for various Upper Gastrointestinal (GI) cancers.One occurrence of this data group is permitted. |
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Mandation |
Data Elements |
R |
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R |
MARGIN INVOLVED INDICATION CODE (PROXIMAL OR DISTAL RESECTION MARGIN) |
R |
UROLOGICAL: BLADDER - PATHOLOGY
To carry pathology details for Urological cancer for the bladder.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
UROLOGICAL: KIDNEY - PATHOLOGY
To carry pathology details for Urological cancer for the kidney.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
UROLOGICAL: PENIS - PATHOLOGY
To carry pathology details for Urological cancer for the penis.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
UROLOGICAL: PROSTATE - PATHOLOGY
To carry pathology details for Urological cancer for prostate.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
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R |
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R |
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R |
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R |
UROLOGICAL: TESTICULAR - PATHOLOGY
To carry pathology details for Urological cancer for testicular.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
M |
Also Known As
This data set is also known by these names:
Context | Alias |
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Also known as | Cancer Outcomes and Services Data Set: Pathology |
Full name | Pathology Data Set |
Short name | Pathology |