Cancer Outcomes and Services Data Set - Core
For all diagnoses not covered by a cancer site specific data set, only the Core Data Set should be completed.
Overview
Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
Introduction
The Cancer Outcomes and Services Data Set is a compiled data set which provides the standard for secondary uses information required to support national cancer registration and associated analysis (at local, regional, national and international level), as well as other national cancer audit programmes.
The standard and XML Schema consists of:
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a set of individual data items, with their definitions
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the assemblage of data items into discrete data sets
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the means of flowing the data items
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compilation of the data items into a reconciled and verified data set.
Additionally, the output supports commissioning and service development through provision of relevant information on service delivery and outcomes.
All PATIENTS diagnosed with or receiving cancer treatment in or funded by the NHS in England are covered by the standard. This includes adult and paediatric cancer PATIENTS. The standard applies to all ORGANISATIONS providing Cancer Services within secondary care. It does not apply to general practice ORGANISATIONS.
The Cancer Outcomes and Services Data Set covers diseases as defined by the United Kingdom and Ireland Association of Cancer Registries (UKIACR) as described in the User Guide at Appendix A and B.
Unless otherwise specified, the term cancer is used throughout the standard and related documents to cover all conditions registerable by the United Kingdom and Ireland Association of Cancer Registries.
Submission Information
Providers of Cancer Services are required to provide a monthly return on all cancer PATIENTS using the Cancer Outcomes and Services Data Set.
The Cancer Outcomes and Services Data Set is submitted to the National Cancer Registration and Analysis Service (NCRAS) using the COSDS XML Schema.
While the core and cancer site specific data sets are shown as separate data sets within the NHS Data Model and Dictionary, the COSDS XML Schema integrates each core and cancer site specific set of data elements. Documentation provided on the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary XML Schemas gives full details of the specification.
For all diagnoses not covered by a cancer site specific data set, only the Core Data Set should be completed. A full list of diagnoses mapped to the appropriate data set is provided in the National Cancer Registration and Analysis Service User Guide.
Pathology
From January 2016 Pathology Laboratories across England were mandated through DCB1521 17/2014, to collect and return structured pathology using the COSDS XML Schema.
This replaced the current reporting to the National Cancer Registration and Analysis Service of electronic pathology reports which were then transcribed by the National Cancer Registration and Analysis Service into the Cancer Registration Reports. This also prevented Cancer Service teams, for example, Multidisciplinary Teams, Pathway Co-ordinators, duplicating the work, which had been happening as part of their data collection process.
From April 2020, the pathology data can only be collected and submitted using the separate Pathology Data Set and Pathology XML Schema. Pathology data items have been removed from the main Cancer Outcomes and Services Data Set.
This allows the Cancer Service teams to concentrate on collecting and reporting all the other clinical data required for the Cancer Outcomes and Services Data Set and the Pathologists to collect and report the pathology items. This will reduce the burden of data collection for the Cancer Service teams and allow for more accurate pathology reporting to be submitted to the National Cancer Registration and Analysis Service.
There will be no requirement for Pathology Laboratories to double report. Once their Laboratory Information Management Systems (LIMS) are updated to report in the COSDS XML Schema, all other pathology reporting can cease.
Further Guidance
Further guidance for submission of the Cancer Outcomes and Services Data Set is provided by the National Cancer Registration and Analysis Service at Cancer Outcomes and Services Dataset.
Mandation
The Mandation column indicates the recommendation for the inclusion of data.
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M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
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R = Required: NHS business processes cannot be delivered without this data element
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O = Optional: the inclusion of this data element is optional as required for local purposes.
XML Schema
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
Specification
SUBMISSION HEADER
To carry the submission header details.One occurrence of this group is required. |
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Mandation |
Data Elements |
M |
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M |
|
M |
|
M |
|
M |
|
M |
RECORD IDENTIFIER
To carry the record identifier details.One occurrence of this group is required. |
|
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Mandation |
Data Elements |
M |
LINKAGE: IDENTIFIER CHOICE - CORE | |
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Mandation |
CHOICE 1 - NHS NUMBER
To carry patient identity details for linkage.One occurrence of this group is required if selected as the choice. |
M |
|
Or | |
Mandation |
CHOICE 2 - LOCAL PATIENT IDENTIFIER
To carry patient identity details for linkage.One occurrence of this group is required if selected as the choice. |
M |
LINKAGE: PATIENT IDENTITY DETAILS - CORE
To carry patient identity details for linkage.One occurrence of this group is required if selected as the choice. |
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Mandation |
Data Elements |
M |
|
M |
|
M |
DIAGNOSTIC: CANCER PATHWAY CHOICE - CORE | |
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Mandation |
CHOICE 1 - PRIMARY CANCER PATHWAY
To carry diagnostic details for linkage.One occurrence of this group is required if selected as the choice. |
M |
|
M |
|
M |
|
Or | |
Mandation |
CHOICE 2 - NON PRIMARY CANCER PATHWAY
To carry diagnostic details for linkage.One occurrence of this group is required if selected as the choice. |
M |
DIAGNOSTIC: NON PRIMARY CANCER PATHWAY - CORE | |
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Mandation |
CHOICE 1 - CANCER RECURRENCE
To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Recurrence.One occurrence of this group is required if selected as the choice. |
R |
|
M |
CANCER METASTATIC DISEASE TYPE Multiple occurrences of this item are permitted |
M |
METASTATIC SITE (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
R |
PALLIATIVE CARE SPECIALIST SEEN INDICATOR (CANCER RECURRENCE) |
R |
Multiple occurrences of this item are permitted |
Or | |
Mandation |
CHOICE 2 - CANCER PROGRESSION
To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Progression.One occurrence of this group is required if selected as the choice. |
M |
|
M |
CANCER METASTATIC DISEASE TYPE Multiple occurrences of this item are permitted |
M |
METASTATIC SITE (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
Or | |
Mandation |
CHOICE 3 - CANCER TRANSFORMATION
To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Transformation.One occurrence of this group is required if selected as the choice. |
R |
|
R |
DIAGNOSTIC: NON PRIMARY CANCER PATHWAY: TRANSFORMATION CURRENT MORPHOLOGY CHOICE - CORE | |
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Mandation |
CHOICE 1 - CANCER TRANSFORMATION: CURRENT MORPHOLOGY ICD
To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Transformation Current Morphology (ICD).One occurrence of this group is required if selected as the choice. |
M |
|
Or | |
Mandation |
CHOICE 2 - CANCER TRANSFORMATION: CURRENT MORPHOLOGY SNOMED
To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Transformation Current Morphology (SNOMED).One occurrence of this group is permitted if selected as the choice. |
M |
|
M |
DEMOGRAPHICS - CORE
To carry patient demographic details.One occurrence of this group is permitted. |
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Mandation |
Data Elements |
R |
|
R |
|
R |
PATIENT USUAL ADDRESS (AT DIAGNOSIS) - ADDRESS STRUCTURED Or |
R |
|
R |
|
R |
|
R |
|
R |
|
R |
|
R |
REFERRALS AND FIRST STAGE OF PATIENT PATHWAY - CORE
To carry patient referral details to the trust that receives the first referral.These details include information relating to the first stage of the Patient Pathway.One occurrence of this group is permitted per Primary Cancer Pathway. |
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Mandation |
Data Elements |
R |
|
R |
|
M |
|
M |
PROFESSIONAL REGISTRATION ENTRY IDENTIFIER (CANCER FIRST SEEN) |
R |
|
R |
|
R |
ORGANISATION SITE IDENTIFIER (OF PROVIDER FIRST CANCER SPECIALIST) |
R |
NON PRIMARY CANCER PATHWAY: REFERRAL - CORE
To carry non primary cancer pathway details.One occurrence of this group is permitted per Non Primary Cancer Pathway. |
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---|---|
Mandation |
Data Elements |
R |
SOURCE OF REFERRAL FOR OUT-PATIENTS (NON PRIMARY CANCER PATHWAY) |
R |
|
R |
ORGANISATION SITE IDENTIFIER (OF PROVIDER FIRST SEEN NON PRIMARY CANCER PATHWAY) |
IMAGING - CORE
To carry imaging details.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
M |
|
M |
|
R |
IMAGING: CANCER SITE LOCATION CHOICE - CORE | |
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Mandation |
CHOICE 1 - NICIP
To carry imaging NICIP details.Multiple occurrences of this group are permitted per Core Imaging. |
M |
|
Or | |
Mandation |
CHOICE 2 - SNOMED CT
To carry imaging SNOMED CT details.Multiple occurrences of this group are permitted per Core Imaging. |
M |
|
Or | |
Mandation |
CHOICE 3 - CANCER SITE IMAGING LOCATION GROUP
To carry imaging details.Multiple occurrences of this group are permitted per Core Imaging. |
M |
|
R |
|
R |
|
Mandation |
To carry imaging details
To carry imaging details.Multiple occurrences of this group are permitted. |
R |
|
R |
DIAGNOSTIC PROCEDURES - CORE
To carry diagnostic procedure details.Multiple occurrences of this group are permitted. |
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Mandation |
Data Elements |
M |
|
M |
DIAGNOSTIC PROCEDURES: CHOICE - CORE | |
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Mandation |
CHOICE 1 - OPCS
To carry OPCS diagnostic procedure details.Multiple occurrences of this group are permitted per Core Diagnostic Procedures. |
M |
|
Or | |
Mandation |
CHOICE 2 - SNOMED CT
To carry SNOMED CT diagnostic procedure details.Multiple occurrences of this group are permitted per Core Diagnostic Procedures. |
M |
DIAGNOSTIC PROCEDURES: SENTINEL NODE BIOPSY - CORE
To carry diagnostic details for Sentinel Node Biopsy.One occurrence of this group is permitted per Core Diagnostic Procedures. |
|
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Mandation |
Data Elements |
R |
DIAGNOSIS - CORE
To carry diagnostic details for the Primary Diagnosis.One occurrence of this group is permitted per Primary Cancer Pathway. |
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---|---|
Mandation |
Data Elements |
R |
|
R |
|
R |
|
M |
|
M |
|
R |
|
R |
|
R |
|
R |
|
M |
CANCER METASTATIC DISEASE TYPE Multiple occurrences of this item are permitted |
M |
METASTATIC SITE (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
DIAGNOSIS: ADDITIONAL ITEMS - CORE
To carry additional diagnostic details.One occurrence of this group is permitted per Core Diagnosis. |
|
---|---|
Mandation |
Data Elements |
R |
|
R |
Multiple occurrences of this item are permitted |
R |
|
R |
|
R |
DIAGNOSIS: CANCER PROGRESSION - CORE
To carry additional diagnostic details for Cancer Progression.May be multiple occurrences per Core Diagnosis. |
|
---|---|
Mandation |
Data Elements |
M |
CANCER METASTATIC DISEASE TYPE Multiple occurrences of this item are permitted |
M |
METASTATIC SITE (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
M |
DIAGNOSIS: CANCER TRANSFORMATION - CORE
To carry additional diagnostic details for Cancer Transformation.May be multiple occurrences per Core Diagnosis. |
|
---|---|
Mandation |
Data Elements |
M |
DIAGNOSIS: CANCER TRANSFORMATION CHOICE - CORE | |
---|---|
Mandation |
CHOICE 1 - ICD
To carry ICD additional diagnostic details for Cancer Transformation.One occurrence of this group is required per Core Diagnosis Cancer Transformation. |
M |
|
Or | |
Mandation |
CHOICE 2 - SNOMED
To carry additional diagnostic details for Cancer Transformation.One occurrence of this group is required per Core Diagnosis Cancer Transformation. |
M |
|
M |
DIAGNOSIS: BANKED TISSUE - CORE
To carry Banked Tissue details.One occurrence of this group is permitted per Core Diagnosis. |
|
---|---|
Mandation |
Data Elements |
R |
PATIENT CONSENT FOR TISSUE BANKED AT DIAGNOSIS INDICATION CODE |
R |
TISSUE TYPE BANKED AT DIAGNOSIS (CANCER) Multiple occurrences of this item are permitted |
PERSON OBSERVATION - CORE
To carry person observation details.Multiple occurrences of this group are permitted. |
|
---|---|
Mandation |
Data Elements |
R |
|
R |
|
R |
|
M |
CLINICAL NURSE SPECIALIST AND RISK FACTOR ASSESSMENT - CORE
To carry Clinical Nurse Specialist and risk factor assessment details.One occurrence of this group is permitted. |
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---|---|
Mandation |
Data Elements |
R |
|
R |
|
R |
|
R |
|
R |
|
R |
|
R |
|
R |
CLINICAL NURSE SPECIALIST: HOLISTIC NEEDS ASSESSMENT (HNA) - CORE
To carry details of Clinical Nurse Specialist, Holistic Needs Assessments.Multiple occurrences of this group are permitted. |
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---|---|
Mandation |
Data Elements |
R |
|
R |
|
R |
|
R |
CLINICAL NURSE SPECIALIST: PERSONALISED CARE AND SUPPORT PLANNING - CORE
To carry details of Clinical Nurse Specialist, Personalised Care and Supportive Planning Assessments.Multiple occurrences of this group are permitted. |
|
---|---|
Mandation |
Data Elements |
R |
|
R |
|
R |
PERSONALISED CARE AND SUPPORT PLANNING POINT OF CANCER PATHWAY |
R |
STAFF ROLE CARRYING OUT PERSONALISED CARE AND SUPPORT PLANNING |
MULTIDISCIPLINARY TEAM MEETINGS CHOICE - CORE | |
---|---|
Mandation |
CHOICE 1 - NOT DISCUSSED
To carry details of all multidisciplinary team meetings where the patient was not discussed.One occurrence of this group is required per Core Multidisciplinary Team Meetings if selected as the choice. |
M |
MULTIDISCIPLINARY TEAM MEETING CANCER CARE PLAN NOT DISCUSSED INDICATION CODE |
Or | |
Mandation |
CHOICE 2 - DISCUSSED
To carry details of all multidisciplinary team meetings where the patient was discussed.One occurrence of this group is required per Core Multidisciplinary Team Meetings if selected as the choice. |
M |
MULTIDISCIPLINARY TEAM MEETING CANCER CARE PLAN DISCUSSION TYPE |
M |
|
M |
ORGANISATION SITE IDENTIFIER (OF MULTIDISCIPLINARY TEAM MEETING) |
M |
|
R |
CANCER CARE PLAN - CORE
To carry cancer care plan details.One occurrence of this group is permitted per Primary Cancer Pathway. |
|
---|---|
Mandation |
Data Elements |
R |
|
M |
PROFESSIONAL REGISTRATION ISSUER CODE (MULTIDISCIPLINARY TEAM LEAD) |
M |
PROFESSIONAL REGISTRATION ENTRY IDENTIFIER (MULTIDISCIPLINARY TEAM LEAD) |
R |
|
R |
Multiple occurrences of this item are permitted |
R |
|
O |
MOLECULAR AND BIOMARKERS - GERMLINE TESTING FOR CANCER PREDISPOSITION - CORE
To carry Molecular and Biomarkers (Germline Testing for Cancer Predisposition) details for a patient.Multiple occurrences of this group are permitted. |
|
---|---|
Mandation |
Data Elements |
R |
|
R |
GERMLINE GENETIC TEST TYPE OFFERED Multiple occurrences of this item are permitted |
R |
OTHER GERMLINE GENETIC TEST TYPE OFFERED COMMENT Multiple occurrences of this item are permitted |
R |
|
R |
|
R |
OFFER STATUS (REFERRAL TO REGIONAL CLINICAL GENETICS SERVICE) |
MOLECULAR AND BIOMARKERS - SOMATIC TESTING FOR TARGETED THERAPY AND PERSONALISED MEDICINE - CORE
To carry Molecular and Biomarkers (Somatic Testing for Targeted Therapy and Personalised Medicine) details for a patient, where these have been performed by the clinical teams.Multiple occurrences of this group are permitted. |
|
---|---|
Mandation |
Data Elements |
R |
GENE OR STRATIFICATION BIOMARKER TYPE ANALYSED Multiple occurrences of this item are permitted |
R |
OTHER GENE OR STRATIFICATION BIOMARKER TYPE ANALYSED COMMENT Multiple occurrences of this item are permitted |
R |
|
R |
CLINICAL TRIALS - CORE
To carry details for a patient who is eligible for a cancer clinical trial.Multiple occurrences of this group are permitted. |
|
---|---|
Mandation |
Data Elements |
R |
|
R |
|
R |
|
R |
STAGING - CORE
To carry the staging details at the time that the first cancer care plan is agreed.One occurrence of this group is permitted per Primary Cancer Pathway. |
|
---|---|
Mandation |
Data Elements |
R |
|
R |
|
R |
|
R |
|
R |
ORGANISATION SITE IDENTIFIER (OF TNM STAGE GROUPING FINAL PRETREATMENT) |
R |
|
R |
|
R |
|
R |
|
R |
|
R |
ORGANISATION SITE IDENTIFIER (OF TNM STAGE GROUPING INTEGRATED) |
R |
|
M |
|
M |
SITE SPECIFIC STAGING - CORE
To carry the site specific cancer staging details. These fields are only required where there is a site specific stage recorded for a patient and will not be applicable to every cancer.Multiple occurrences of this group are permitted. |
|
---|---|
Mandation |
Data Elements |
M |
ORGANISATION SITE IDENTIFIER (OF CANCER SITE SPECIFIC STAGE) |
M |
TREATMENT - CORE
To carry the cancer treatment details.Multiple occurrences of this group are permitted. |
|
---|---|
Mandation |
Data Elements |
R |
|
R |
|
M |
|
M |
|
M |
ORGANISATION SITE IDENTIFIER (OF PROVIDER CANCER TREATMENT START DATE) |
M |
|
M |
|
O |
CANCER END OF TREATMENT SUMMARY PLAN COMPLETION DATE Multiple occurrences of this item are permitted |
R |
|
R |
TREATMENT: SURGERY - CORE
To carry the surgery details.One occurrence of this group is permitted per Core Treatment. |
|
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Mandation |
Data Elements |
M |
|
R |
|
M |
PROFESSIONAL REGISTRATION ISSUER CODE (RESPONSIBLE SURGEON) Multiple occurrences of this item are permitted |
M |
PROFESSIONAL REGISTRATION ENTRY IDENTIFIER (RESPONSIBLE SURGEON) Multiple occurrences of this item are permitted |
R |
|
R |
|
R |
Multiple occurrences of this item are permitted |
R |
Multiple occurrences of this item are permitted |
R |
|
R |
|
R |
TREATMENT: STEM CELL TRANSPLANTATION - CORE
To carry surgery Stem Cell Transplantation details.One occurrence of this group is permitted per Core Treatment. |
|
---|---|
Mandation |
Data Elements |
R |
|
R |
|
R |
ACUTE ONCOLOGY - CORE
To carry Acute Oncology details.Multiple occurrences of this group are permitted. |
|
---|---|
Mandation |
Data Elements |
R |
|
R |
|
R |
|
R |
ACUTE ONCOLOGY ASSESSMENT PATIENT PRESENTATION TYPE Multiple occurrences of this item are permitted |
R |
LABORATORY RESULTS - CORE
To carry laboratory result details.Multiple occurrences of this group are permitted. |
|
---|---|
Mandation |
Data Elements |
M |
|
M |
LABORATORY RESULTS: GENERAL - CORE
To carry general laboratory result details.One occurrence of this group is permitted per Core Laboratory Results. |
|
---|---|
Mandation |
Data Elements |
R |
|
R |
|
R |
Also Known As
This data set is also known by these names:
Context | Alias |
---|---|
Also known as | Cancer Outcomes and Services Data Set: Core |
Full name | Core Data Set |
Short name | Core |