NHS Breast Screening Programme Central Return Data Set (KC62)

The NHS Breast Screening Programme Central Return Data Set (KC62) provides information to the NHS Breast Screening Programme from Breast Screening Units on the processes and outcomes of the call and recall system.

Overview

Introduction

The information is used:

to monitor progress towards achieving the cancer targets
to ensure that the NHS Breast Screening Programme is monitored and managed effectively.

The NHS Breast Screening Programme Central Return Data Set (KC62) is analysed by NHS England and also used by the Public Health Research Unit to evaluate the effectiveness of Breast Screening. It is also used by the Regional Breast Screening Quality Assurance Reference Centres as part of the quality assurance process, and enables on-going monitoring of their individual programmes and comparisons within their regions and with England overall.

Collection

The NHS Breast Screening Programme Central Return Data Set (KC62) requires information on women invited for Breast Screening, the outcome of the Breast Screening and further information on each cancer detected. It is completed annually and submitted by the end of the October following the end of the REPORTING PERIOD to which the data relates.

Women are included in the NHS Breast Screening Programme Central Return Data Set (KC62) only if the test date offered or SCREENING TEST DATE was within the review period. All Screening Tests taking place within the REPORTING PERIOD are counted. One woman may not have more than one outcome of cancer in the REPORTING PERIOD. Women who are referred directly for a Screening Test (rather than an invitation as part of a Screening Programme) are also included if the SCREENING TEST DATE is within the REPORTING PERIOD.

Submission

The NHS Breast Screening Programme Central Return Data Set (KC62) is submitted via the Breast Screening Information System.

Parts One to Five of the NHS Breast Screening Programme Central Return Data Set (KC62) should be reported for Tables A to T.


TABLE	DESCRIPTION
A*	First invitation for routine screening
B*	Routine invitation to previous non-attenders
C1*	Return invitation to previous attenders (last screen within 5 years)
C2	Return invitation to previous attenders (last screen more than 5 years)
D	Short term recall
E	Self/GP referrals of women not previously screened
F1	Self/GP referrals of women previously screened (last screen within 5 years)
F2	Self/GP referrals of women previously screened (last screen more than 5 years previously)
T	All invitations and screenings: Sum of Tables A - F2

* INVASIVE BREAST CANCER TOTAL OBSERVED, INVASIVE BREAST CANCER TOTAL EXPECTED and STANDARDISED DETECTION RATIO TOTAL are only appropriate for tables A, B and C1.

Specification


Organisation and reporting period To carry details of the reporting organisation and the reporting period. One occurrence of this group is required.
Mandation	Data Elements
	REPORTING PERIOD START DATE
	REPORTING PERIOD END DATE
	ORGANISATION IDENTIFIER (BREAST SCREENING UNIT)


Unit Indicators One occurrence of this group is required.
Mandation	Data Elements
	BREAST SCREENING READING TYPE AUTOMATIC RECALL WHEN UNANIMOUS (PERCENTAGE)
	BREAST SCREENING READING TYPE AUTOMATICALLY CHOOSE ABNORMAL (PERCENTAGE)
	BREAST SCREENING READING TYPE ARBITRATE WHEN ABNORMAL (PERCENTAGE)
	BREAST SCREENING READING TYPE NO AUTOMATIC ARBITRATION (PERCENTAGE)
	WOMEN WITH FIRST OFFERED APPOINTMENT WITHIN 36 MONTHS OF PREVIOUS SCREEN (PERCENTAGE)
	ROUTINE DIGITAL SCREEN (PERCENTAGE)


Part One Invitations and Outcomes: To carry the details of the outcomes of screening and assessment of all women invited and/or screened.Multiple occurrences of this group are permitted, one for each AGE GROUP reported.
Mandation	Data Elements
	BREAST SCREENING AGE GROUP CODE (KC62) PARTS 1 TO 3
	WOMEN INVITED FOR SCREENING IN PERIOD TOTAL
	WOMEN LOST TO FOLLOW-UP TOTAL (AFTER TECHNICALLY INADEQUATE SCREENING MAMMOGRAM)
	WOMEN SCREENED TOTAL (TECHNICALLY ADEQUATE)
	OUTCOME OF INITIAL SCREEN NOT KNOWN TOTAL
	OUTCOME OF INITIAL SCREEN ROUTINE RECALL TOTAL
	OUTCOME OF INITIAL SCREEN REFERRED FOR ASSESSMENT TOTAL
	FINAL OUTCOME OF ASSESSMENT FAILED TO ATTEND TOTAL
	FINAL OUTCOME OF ASSESSMENT NOT KNOWN TOTAL
	FINAL OUTCOME OF ASSESSMENT ROUTINE RECALL TOTAL
	FINAL OUTCOME OF ASSESSMENT SHORT TERM RECALL TOTAL
	FINAL OUTCOME OF ASSESSMENT CANCER DIAGNOSED TOTAL


Part Two Assessment:To carry the details of the outcomes of assessment by the procedures involved for all women assessed as a result of screening. Multiple occurrences of this group are permitted, one for each AGE GROUP reported.
Mandation	Data Elements
	BREAST SCREENING AGE GROUP CODE (KC62) PARTS 1 TO 3
	WOMEN WITH CANCER DIAGNOSED WITHOUT CYTOLOGY OR HISTOLOGY TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY REFERRED FOR CYTOLOGY AND OR CORE BIOPSY TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY NOT REFERRED FOR OPEN BIOPSY NO RESULT OR INADEQUATE RESULT TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY NOT REFERRED FOR OPEN BIOPSY ROUTINE RECALL TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY NOT REFERRED FOR OPEN BIOPSY SHORT TERM RECALL TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY NOT REFERRED FOR OPEN BIOPSY CANCER TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY REFERRED FOR OPEN BIOPSY TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING OPEN BIOPSY TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING OPEN BIOPSY NO RESULT OR INADEQUATE RESULT TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING OPEN BIOPSY RESULT BENIGN OR NORMAL ROUTINE RECALL TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING OPEN BIOPSY RESULT BENIGN OR NORMAL SHORT TERM RECALL TOTAL
	OUTCOME OF ASSESSMENT UP TO AND INCLUDING OPEN BIOPSY CANCER DIAGNOSED TOTAL


Part Three Cancer Diagnosed:To carry the details of the cancers formally diagnosed in women assessed as a result of screening. Only breast cancers should be reported. Multiple occurrences of this group are permitted, one for each AGE GROUP reported.
Mandation	Data Elements
	BREAST SCREENING AGE GROUP CODE (KC62) PARTS 1 TO 3
	WOMEN WITH CANCER TOTAL
	WOMEN INVASIVE STATUS NOT KNOWN TOTAL
	WOMEN NON-INVASIVE OR POSSIBLY MICRO-INVASIVE TOTAL
	WOMEN DEFINITELY MICRO-INVASIVE TOTAL
	BREAST CANCER INVASIVE SIZE LESS THAN 10mm TOTAL
	BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 10mm AND LESS THAN 15mm TOTAL
	BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 15mm AND LESS THAN 20mm TOTAL
	BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 20mm AND LESS THAN 50mm TOTAL
	BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 50mm TOTAL
	BREAST CANCER INVASIVE SIZE NOT KNOWN TOTAL
	INVASIVE BREAST CANCER TOTAL


Part Four Outcome Measures:To carry the details of outcome measures related to NHS Breast Screening Programme (NHSBSP) quality targets.Multiple occurrences of this group are permitted, one for each AGE GROUP reported.
Mandation	Data Elements
	BREAST SCREENING AGE GROUP CODE (KC62) PARTS 4 TO 5
	WOMEN INVITED FOR ROUTINE SCREENING WITH TECHNICALLY ADEQUATE RESULT (PERCENTAGE OF INVITED)
	REFERRAL RATE FOR BREAST ASSESSMENT (PERCENTAGE OF SCREENED)
	NON-INVASIVE OR MICRO-INVASIVE BREAST CANCERS DETECTED (PER 1,000 SCREENED)
	BENIGN BIOPSY RATE (PER 1,000 SCREENED)
	BENIGN THERAPEUTIC OPERATION NUMBER
	BENIGN THERAPEUTIC OPERATION RATE (PER 1,000 SCREENED)
	INVASIVE BREAST CANCER DETECTION RATE (PER 1,000 SCREENED)
	INVASIVE BREAST CANCER DETECTION RATE INVASIVE SIZE LESS THAN 10mm (PER 1,000 SCREENED)
	INVASIVE BREAST CANCER DETECTION RATE INVASIVE SIZE LESS THAN 15mm (PER 1,000 SCREENED)
	REFERRAL RATE FOR CYTOLOGY AND OR CORE BIOPSY (PERCENTAGE OF SCREENED)
	REFERRAL RATE FOR OPEN BIOPSY (PERCENTAGE OF SCREENED)
	NON-OPERATIVE DIAGNOSIS RATE (PERCENTAGE INVASIVE)
	NON-OPERATIVE DIAGNOSIS RATE (PERCENTAGE NON-INVASIVE)
	NON-OPERATIVE DIAGNOSIS RATE (PERCENTAGE OVERALL)
	SHORT TERM RECALL RATE FOLLOWING ASSESSMENT (PERCENTAGE OF SCREENED)
	INVASIVE BREAST CANCER TOTAL OBSERVED
	INVASIVE BREAST CANCER TOTAL EXPECTED
	STANDARDISED DETECTION RATIO TOTAL


Part Five Data Completeness Indicators:To carry the details of the completeness of data recorded on information systems in a variety of key areas. Multiple occurrences of this group are permitted, one for each AGE GROUP reported.
Mandation	Data Elements
	BREAST SCREENING AGE GROUP CODE (KC62) PARTS 4 TO 5
	BREAST ASSESSMENT RESULT NOT KNOWN (PERCENTAGE OF REFERRED)
	CYTOLOGY AND OR CORE BIOPSY RESULT NOT KNOWN (PERCENTAGE OF REFERRED)
	OPEN BIOPSY RESULT NOT KNOWN (PERCENTAGE OF REFERRED)
	BREAST CANCER INVASIVE STATUS NOT KNOWN (PERCENTAGE OF ALL CANCERS DIAGNOSED)
	INVASIVE BREAST CANCER SIZE NOT KNOWN (PERCENTAGE OF INVASIVE BREAST CANCERS)
	INVASIVE BREAST CANCER LYMPH NODE STATUS NOT KNOWN (PERCENTAGE OF INVASIVE BREAST CANCERS)
	INVASIVE BREAST CANCER GRADE NOT KNOWN (PERCENTAGE OF INVASIVE BREAST CANCERS)
	INVASIVE BREAST CANCER SPECIAL TYPE NOT KNOWN (PERCENTAGE OF INVASIVE BREAST CANCERS)
	BREAST CANCER GRADE NOT KNOWN (PERCENTAGE OF DUCTAL CARCINOMA IN-SITU)


Annex Cancers Detected:To carry the details of each cancer detected by the Screening Service in the review period. Multiple occurrences of this group are permitted, one CANCER per WOMAN detected.
Mandation	Data Elements
	AGE AT FIRST OFFERED APPOINTMENT
	BREAST CANCER INVASIVE STATUS
	INVASIVE TUMOUR SIZE
	TUMOUR GRADE (FOR BREAST SCREENING)
	NODAL STATUS OF TUMOUR NUMBER OF LYMPH NODES SAMPLED
	NODAL STATUS OF TUMOUR NUMBER OF POSITIVE LYMPH NODES SAMPLED
	NODAL STATUS OF TUMOUR NUMBER OF NEGATIVE LYMPH NODES SAMPLED
	BREAST CANCER HISTOLOGICAL TYPE


High Risk Table U To carry the details of women invited, screened, assessed and cancers detected in a high risk category.Multiple occurrences of this group are permitted, one for each RISK CATEGORY detected.
Mandation	Data Elements
	BREAST SCREENING HIGH RISK CATEGORY
	HIGH RISK WOMEN INVITED FOR SCREENING IN PERIOD TOTAL
	HIGH RISK WOMEN SCREENED TOTAL (TECHNICALLY ADEQUATE)
	OUTCOME OF INITIAL SCREEN REFERRED FOR ASSESSMENT TOTAL
	WOMEN ATTENDED FOR ASSESSMENT TOTAL
	FINAL OUTCOME OF ASSESSMENT SHORT TERM RECALL TOTAL
	FINAL OUTCOME OF ASSESSMENT CANCER DIAGNOSED TOTAL
	BREAST CANCER INVASIVE SIZE LESS THAN 10mm TOTAL
	BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 10mm AND LESS THAN 15mm TOTAL
	BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 15mm AND LESS THAN 20mm TOTAL
	BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 20mm AND LESS THAN 50mm TOTAL
	BREAST CANCER INVASIVE SIZE NOT KNOWN TOTAL
	INVASIVE BREAST CANCER TOTAL
	WOMEN LYMPH NODES PATHOLOGY RESULT NEGATIVE TOTAL
	WOMEN LYMPH NODES PATHOLOGY RESULT POSITIVE TOTAL
	WOMEN LYMPH NODES PATHOLOGY RESULT UNKNOWN TOTAL


High Risk Annex To carry the details of each cancer detected in women in a high risk category.Multiple occurrences of this group are permitted, one for each WOMAN screened.
Mandation	Data Elements
	BREAST SCREENING HIGH RISK CATEGORY
	AGE OR PROTOCOL AGE
	BREAST CANCER INVASIVE STATUS
	INVASIVE TUMOUR SIZE
	TUMOUR GRADE (FOR BREAST SCREENING)
	SENTINEL NODE PROCEDURE
	NODAL STATUS OF TUMOUR NUMBER OF LYMPH NODES SAMPLED
	NODAL STATUS OF TUMOUR NUMBER OF POSITIVE LYMPH NODES SAMPLED
	NODAL STATUS OF TUMOUR NUMBER OF NEGATIVE LYMPH NODES SAMPLED
	BREAST CANCER HISTOLOGICAL TYPE

Also Known As

This data set is also known by these names:

Context	Alias
Short name	Breast Screening (KC62)