Paediatric Critical Care Minimum Data Set Overview

Introduction

The Paediatric Critical Care Minimum Data Set (PCCMDS) provides a record of what happens to a PATIENT when they receive Paediatric Critical Care in a Paediatric Intensive Care Unit, or other critical care setting suitable for children.

The primary purpose of the Paediatric Critical Care Minimum Data Set is to allow the operation of the National Tariff Payment System within paediatric critical care. The Paediatric Critical Care Minimum Data Set supports the National Tariff Payment System by capturing the data needed to generate a Healthcare Resource Group (HRG) for each calendar day (or part thereof) of a period of paediatric critical care; these Healthcare Resource Groups are then used to inform the annual aggregate costing exercise, NHS Reference Costs.

Scope and Uses

The scope of the Paediatric Critical Care Minimum Data Set is:

a) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code '04 - Paediatric Intensive Care Unit (Paediatric critical care patients predominate)'

b) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code of either:

  • 16 - Ward for children and young people
  • 17 - High Dependency Unit for children and young people
  • 18 - Renal Unit for children and young people
  • 19 - Burns Unit for children and young people
  • 92 - Non standard location using the operating department for children and young people

to whom one or more of the following CRITICAL CARE ACTIVITY CODES applies for a period greater than 4 hours: 

04Exchange Transfusion (PATIENT received exchange transfusion)
05Peritoneal dialysis (acute PATIENTS only i.e. excluding chronic) *
06Continuous infusion of inotrope, pulmonary vasodilator or prostaglandin (PATIENT received a continuous infusion of an inotrope, vasodilator (includes pulmonary vasodilators) or prostaglandin)
09Oxygen Therapy (supplementary Oxygen Therapy, irrespective of ventilatory state) **
13Tracheostomy cared for by nursing staff (PATIENT receiving care of tracheostomy cared for by nursing staff not by an external Carer (e.g. parent))
16Haemofiltration (PATIENT received Haemofiltration)
50Continuous electrocardiogram monitoring
51Invasive ventilation via endotracheal tube
52Invasive ventilation via tracheostomy tube
53Non-invasive ventilatory support
55Nasopharyngeal airway
56Advanced ventilatory support (Jet or Oscillatory ventilation)
57Upper airway obstruction requiring nebulised Epinephrine/ Adrenaline
58Apnoea requiring intervention
59Acute severe asthma requiring intravenous bronchodilator therapy or continuous nebuliser
60Arterial line monitoring
61Cardiac pacing via an external box (pacing wires or external pads or oesophageal pacing)
62Central venous pressure monitoring
63Bolus intravenous fluids (> 80 ml/kg/day) in addition to maintenance intravenous fluids
64Cardio-pulmonary resuscitation (CPR)
65Extracorporeal membrane oxygenation (ECMO) or Ventricular Assist Device (VAD) or aortic balloon pump
66Haemodialysis (acute PATIENTS only i.e. excluding chronic)
67Plasma filtration or Plasma exchange
68ICP-intracranial pressure monitoring
69Intraventricular catheter or external ventricular drain
70Diabetic ketoacidosis (DKA) requiring continuous infusion of insulin
71Intravenous infusion of thrombolytic agent (limited to tissue plasminogen activator [tPA] and streptokinase)
72Extracorporeal liver support using Molecular Absorbent Liver Recirculating System (MARS)
73Continuous pulse oximetry
74PATIENT nursed in single occupancy cubicle
80Heated Humidified High Flow Therapy (HHHFT) (PATIENT receiving HHHFT)
85PATIENT has an epidural catheter in situ
94PATIENT has arrhythmia requiring intravenous anti-arrhythmic therapy
95PATIENT has reduced conscious level (Glasgow Coma Score 12 or below) and hourly (or more frequent) Glasgow Coma Score monitoring
96Intravenous infusion of sedative agent (PATIENT receiving continuous intravenous infusion of sedative agent)
97PATIENT has status epilepticus requiring treatment with continuous intravenous infusion

Notes:

This data is captured and recorded locally and may be used for the purposes of direct care, clinical audit, Reference Costs, and other local uses. Any transmission of the Paediatric Critical Care Minimum Data Set must be covered by fair processing arrangements in accordance with information governance criteria and appropriate local arrangements.

Commissioning Data Set Transmission

Subject to the Commissioning Data Set Version 6-2 XML Schema Constraints, the Paediatric Critical Care Minimum Data Set is sent to the Secondary Uses Service (SUS) as a part of the following Commissioning Data Set messages, SCCI0076:

The Secondary Uses Service groups this data into paediatric critical care Healthcare Resource Groups. Further guidance can be found on the NHS Digital website at: SCCI0076.